I’m a man in search of a dream, both literally and figuratively.

My dream is to sleep again.

In the solitude of that sleep, I will be able to dream and allow my brain and body to heal and enjoy life the way it’s supposed to be enjoyed.

It sounds simple, doesn’t it? Sleeping. Just close your eyes and drift off into another world and leave your current one behind.

For some of us, it’s the most difficult part of our lives.

I cannot sleep like a normal person because of muscle twitches and jerks at the VERY second I begin to fall asleep.

Every single time I begin slumber, a twitch and jolt from my rebellious body wakes me up.

I’m not alone either. Some call it hypnic jerks, or sleep myoclonus, or sleep starts. I call it torture.

This blog is to bring those of us suffering from this condition together. This is our voice. I’m finished suffering by myself and not knowing how to explain this to doctors or others. Let’s help each other gets our lives back. We don’t have to feel alone and helpless anymore.

417 thoughts on “About”

  1. How’s the nac working

    • So far so good. I have been reducing the dosage, and seeing how frequently I have to take it. I seem to be able to take 3600mg on say a Saturday, and I am good until Tuesday or Wednesday night. Then I take another 3600mg and make it back to Saturday night.

    • I did two sleep studies. They see sleep disturbance but they do not understand its reason nor specific treatment. So, no use in my case

  2. Manwhocannotsleep is the nac seeking for you?

  3. Working****

  4. ty for reply,keep me posted i hope maybe one day we get closer to resolving this i tryed krill oil it works on and off.keep fighting everyone =) one day we will figure this out.

  5. mark are you still using xanax xr or did you swicth to depakote??man whio cannot sleep have you tryed sugar glucose free diets yet like ketogenic diet designed by mayo clinic and are you still on clonazepam,and how is the nac working is it working at all?

    • I quit Zanax because when uncut it back I had terrible withdrawl symptoms . It definitely works on the jerks though . Now I’m trying Klonopin with some success not nearly as strong as Xanax xr . I read many places Klonopin plus sodium valporate is good option

  6. another thing i must put down about the sugar free diet is you cannot consume carbs either its no sugar at all its like if your a diabetic,so you eat allot of meats no starchy foods potatoes,nothing tomatoes has sugar in it stuff like that all meats and greens.

    • Google propriospinal myoclonus at sleep onset. Spouse has had this for years — used alcohol to get to sleep for 20 years — alcoholic now sober for a decade! But sobriety unmasked bipolar II and MYOCLONIC JERKING for usually 2 hours nightly until we could override it usually by holding his head down. He went to a renowned epilesy specialist in 90’s–told he was doing it to get my attention–left her office in despair and got a double brandy and took train home. He never went to any doc without me after that. Fortunately a good neuro psychiatrist put him on Depakote for bipolar which also helpful with jerks. Years later after using multiple

      • Sorry I’m so long winded but I may never get back to this blog –fighting foreclosure pro se and have little time but googled the above propriospinal and your blog came up. This condition was unnamed until 1999 when some neurologists in a Florence Italy clinic studied it. Bottom line there is hope but it is more trial and error. Sedative meds help but be careful because repiration can be sedated too much! Xanax er also helpful. After spouse said no more meds–I researched for diagnosis and alternative remedies. Came up with 5-HTP and Valerian Root. They worked well for awhile but finally he h

      • 3rd iininsinstinstainstallment.He had to go on klonipin and frequently takes homeopathic sleep remedies over the counter by Hylands such as Calms Forte and one for restlesslegs that also helps with this condition — apparently as alpha brain waves begin to put you in a sleeping state something gets triggered in your spine and the jerking starts! I think concussion in the past and possibly difficult birth as in forceps delivery may be factors.

      • 4th try–Fortunately the brain is being researched big time now. The other cause that seems likely is the brain chemistry issues such as Gaba. Just do not give up. The rare times I have trouble sleeping I start praying for others and very quickly fall asleep — worth a try! Know you’ll be in my prayers and if anyone tries to say it is in your head–tell them they might be on to something and list out half a dozen brain chemicals that just may make them grateful they can lay their head down in peace and sleep. I would not wish this on my worst enemy. Find a neurologist that will listen to you–what you’re describing is not epilepsy–do a sleep study with no meds

      • I did my sleep studies on Lunesta..BIg Mistake.

    • OK last installment. Tried to cover all the bases. Do keep a daily journal of meds hours of sleep etc. If you can figure out your triggers if any it may make it easier to find a remedy. BTW I find Dr. Amen’s books very helpful — he’s a psychiatrist who researches brain injuries and uses brain scans to figure out what supplements and meds fit the individual–his clinics are in CA. He’s often on PBS. Excellent!! My spouse found routine very important along with other healthy habits. We were fortunate to have good insurance and a great teaching hospital in our plan. But it was my determined research one intense weekend five years ago that found “propriospinal myoclonus at sleep onset.” There are lot

      • 6th try! Smart phone terrible for typing! Just wanted to leave knowing I had shared virtually all I have learned in the thirty years of observing this dreadful condition syndrome disorder or disease! Just know there is a solution out there but alcohol will only make it and your life much worse. Find someone to watch you while you sleep who can attest to your symptoms and describe them in writing. BTW “Elsevier” website is great resource for sleep research! Gotta run. Hope something in this epistle helps. Prayers risin’! MJ

      • Final installment — we saw 9 neurologists with only myoconus at night creeping into day. This occurs also in a relaxed state as in watching golf. Vigilance is a word describing mental action that overrides jerking by making your brain active rather than relaxed but it does not allow you to sleep so at best it is temporary solution. The TV series House had an episode describing this — they described it as your brain reacts like you are dying when you try to sleep and jerks you awake–don’t know what year it was but it was interesting. Perhaps if you’re near a teaching hospital a neurologist might want to study

      • Thank you so much for your contributions. I really appreciate you taking the time to do it. I’m sorry you guys had to deal with this for so long. It can paralyze your life. Please keep in touch and I hope you can post here whenever you feel like it.
        Take care!

  7. im not really buying into the whle stress thing i think the spinal thing might have some merrit because when ever i jerk i can feel it in the back of my head in neck area a loud ringing sound and then a leg moves or a arm thats why i wnat to give corti co steriods a try if its inflamed get the inflamation down and urica we are on are way back to being normal lol.

  8. o one more thing before i forget i have found a place supposedly doesnt use benzos for the jerks and i think use different anti convulsants for them its called cleveland clinic foundation up in ohio and aparently they have a range of treatments for this problem,i think if i get the money and the time ill head up there see what they can do for me.

  9. mark are you able to controll them in some way that makes you think its anxiety,if you are share cause i dont think its anxiety at all because i did meditation and notta i did it for months lol.The thing of it it is we are on anxiety meds it should nock anxiety right out of the game no??

    • Yes you have a point . I swear im still not sure . Mine started when I got on testosterone therpay . Every time I got in it they got way worse . Some mwdications make them worse. It is so hard to say . It could be hormonal also . But it could be deep seated anxiety also . For example when I take xanax er as I said it will knock them out . If you supress the cental nervous system enough they stop I believe . But using benzodiapines like Xanax are dangerous long term I belive . That is why I say it is anxiety possibly . Try a calcium supplement if you have not. The fright is no one knows exactly what they are . Could be withdrawl from some kind of substance also . Any sunstance .

      • yes it is true that benzos long term are dangerous but i know someone who was on it for 15 years with insomnia and hes still ok id rather take the benzo lol and sleep then not take em and go five days with out sleep like last time,ive been looking into cleveland clinic foundation and i think they have the answers we seek,o and mark i think your right on with the hormornal thing its definately something to do with that,because when it was sunny where i live i got sunlight, and the sun boosts certain hormones and i was able to sleep without jerking for about 4 months but i had to be outside for 4-5hours in the sun a day for it to get absorbed vitamin d into the skin,so i think your right its definately hormone related and i think that the benzos are blocking certain hormones like serotonin and gaba receptors in the brain were the hormones are released or other receptors that we cant even figure thats why doctors are stupid and wont even give it a second look because they havent been deprived of sleep like us yet.When a md gets it itll be a different story then o theres a serious problem def con 3 lol.

      • Hi,

        Anxiety plays a big part, definitely. I’ve been living with this for approximately five years now non-stop.

        Here’s my story on how it started:

        This started following a panic attack when I was around 23 years old. That was the second panic attack I had my entire life and I’ve never had them. So I was more anxious that time about it because I didn’t know how to handle it. But I didn’t go seek any professional help because I always thought I can handle it on my own and with the support of my girlfriend, and I did. When it started I couldn’t sleep for one or two straight nights at any given time with non-stop jerks as I start to doze off. Which, by the way, exacerbates the anxiety and led to depression.

        Here’s the interesting part:
        After about 3 months on with hypnic jerks learning meditation, relaxation exercises, training my mind to be positive (Because I was a very pesimistic persion before that). Gradually, the hypnic jerks just STOPPED and I mean completely. No hypnic jerks for approximately TWO YEARS.

        Note that I didn’t take any kind of drugs that time. No supplements, sleeping pills, nor anti-depressants. I didn’t smoke and drink that time. So I believe substance withrawal isn’t the only culprit for this as I read in the comments.

        Then, the sad part is after experiencing another panic attack by around age 25 due to, I would consider a quarter-life crisis, I got them hypnic jerks back and got depressed again. I managed to heal my depression with what I previously did which naturally just watch my negative thoughts and turned them positive. No anti-depressants of any sort. The closest one I’ve taken was an anti-allergy (anxiolytic) which was prescribed by a cardiologist I went to due to not sleeping for three straight days and because I thought it might be a heart problem.

        The depression only lasted for around 4-6 months. And I know how to handle mind now and hasn’t had any panic attack ever since. I’m now turning 30 years old. But the hypnic jerk remained.

        Sometimes it subsides for a week then it comes back. The longest I’ve been without it is a month of just two jerks. But eventually it comes back now. I get by mostly with magnesium and calcium supplements, alcohol and meditation. On worst nights, I take clonazepam (0.5 mg). I only started it for almost a year now when I abandoned my hope that it’s gonna just fade like it was the first time. I’m still hopeful to find a cure. I’m actually pretty optimistic now. That’s one thing I learned with this illness, anyway.

  10. Ironically, for me it got triggered with anxiety and depression. But now that those two things have gone. The hypnic jerks remained and is the one who’s triggering anxiety at not of fear of not sleeping sometimes. Because when these jerks start, sometimes you can’t help but be anxious.

  11. just talked with another person with morvans syndrome that makes three now and they have the jerks onset of sleep!This is the beginning of morvans syndrome im telling you all,i have the twitching muscles during the day and night i got these damn jerks and on and off insomnia!Each case of morvans is different one might not have morvans but have isaacs syndrome each have different names and have the same symptoms.

  12. trying couple new things ill keep you posted i noticed that if i have allot of sea salt in my soup like organic chicken broth if i have soup during the day keep my salt intake up i have less jerks and also try to well i dont know if i should put this advice on here because if you use it in the wrong way your asking for few days of discomfort or more jerks or just plain insomnia but it has allot to do with this its kinda inapropriate to put on here,this specific thing that we all do affects are steroid hormones and three other hormones serotonin dopamine and the what i call unknowns.The salt intake thing has really helped though keeping it up.Im starting to see a glucose\salt balance going on here because so many people say alcohol either makes it better or worse because alcohol converts to sugar in the blood stream by the liver but it jumps your glucose levels through the roof.I tryed cyclobenzaprine intermixed with klonopin
    .1/2 miligram with 10mg of cyclobenzaprine.

  13. Poodlepal said:

    I’ve been exhausted at my new job and sleeping like the dead. Now, I’m off for a week, and I had quite a jerkful (attempted) nap, complete with snort jerking. I’m going to take a calcium magnesium tablet and hope for the best for tonight. Oddly enough, I’m pretty calm now. If it is anxiety related, for me, it is delayed anxiety==it comes on after a period of stress,not during. That’s also when I’m more vulnerable to panic attacks.

    I definitely think it is mainly anxiety related for probably most people, though not all.

    • Anonymous said:

      You on on to something. I know it is not completely anxiety related please trust me. It does not help it for sure however. Make sure not to take to much calcium with magnesium. Try this. Get the NOW brand of Magnesium and zinc. Works better than just calcium alone. Both together may be best.

  14. I’m getting a lumbar puncture done soon I’ll keep you all posted as to what they find

  15. i am pleased to find this blog/forum on hypnic jerks or myoclonus. i very much appreciate the effort in an attempt to find a remedy. FWIW, below is a brief of my case.

    i’m in my late 60s and until a couple of years ago, rarely if ever suffered from this condition. Since the jerks began, they have become progressively worse, often awaken me in the middle of the night and also awaken my wife. Duration has been about an hour, after which the jerks seemingly cease, enabling me to sleep in the predawn hours. In any case mine are not restricted to the time of falling asleep.

    Most recently it seemed to be connected to taking ambien for sleep. After weening myself off that hypnotic drug i found 95% relief after a few days of being off the drug. Lately, after a couple of months of relief, it has been creeping back, though with less intensity and perhaps less duration.

    Previously, i had tried stopping my statin which had some success for a short while. i am now back on a statin, aspirin, and ace inhibitor.

    i have tended to be persuaded by the idea that this is brain related. i have cerebral palsy but that a has been stable from birth, so i do find it perplexing that this condition would flare up so late in life, if indeed it is related to the CP.

    In my case, i doubt it has anything to do with anxiety.

    • Anonymous said:

      Having this for the last 2 years plus I tend to agree. May people will say it is anxiety. I believe it may exacerbate it a Tiny bit but not really. It is physical there is no question anymore in my mind about it. Medications can definitely make it worse or cause it.

  16. hypnic_jerker said:

    hi all, im a pharmacist 26YO, i work 12 hrs/day, 6 days a week, for the last 4 months i started working out after finishing my work hours (after 12 am), so i hit the gym start working out while im already exhausted but i cant live without working out and i decided to gain muscle so i started to lift weights heavier than what i can handle, but soon enough my muscles responded and the new weights became handy, but i never took any supplements / protein shakes or any amino or anything just ginsing and L-carnitine, after four months of this life style, and suddenly i couldnt sleep a whole night because of this strange new jerk that hits me as soon as im about to fall asleep
    i was on coffee like 4 cups a day with double dose before gym time(12 am), so i decided to cut coffee and after a day of no coffee no training i slept without any issues, the day after i drank a cup of coffee at 8 pm and another at 1 am without working out that night, and i had the so called hypnic jerk, and it got me since then without stop, every single night, just a week and i had a fear of the bed and an all-day long thinking am i gonna get that jerk tonight too? but i didnt sleep last night! what if i couldnt sleep tonight too!!! omg can i live without sleep, so it turned into a panic attack
    and bedtime became my fight not rest time, its my day challenge am i gonna sleep? but we cant live without sleeping so am i gonna die if i didnt sleep tonight too?
    i started using tegretol 200 to sleep and it worked, 2 days after i had a strange feeling during talking to a patient at work time, suddenly when he was talking to me about his issue i had a sudden feeling that im fed up with him and like im gonna shout at him ENOUGH AND GET THE F**K OFF, omg WTH is going on here ofc i controlled my Stress/ Anxiety or whatever it was, but it was just the start of this anxiety / fear of losing control on my self, so i went to a psycho, coz at that moment i was sure that its a psychological issue not a neurological issue, i talked with him about my life style, my hypnic jerks and the fear of losing control on my self associated with anxiety, he told me its all related and its all a stress issue/ anxiety accompanied with panic attack due to fear of sleeplessness and he prescribed me paroxetine 20 and alprazolam 0.5 before sleep, and ill keep using paroxetine to 9 months at least, i started using them, the anxiety ofc got worse and i left my work because i was unable to deal with people cause i was afraid to lose my patience while dealing with patients and be rude, after 20 days of using paroxetine once daily my anxiety got better and now i feel like a normal person again, ofc alprazolam 0.5 calm me at night and makes me sleep without even thinking about the jerks i just faint after 1hr of taking it, and i wake up so calm and i have very nice dreams at night, although i get some jerks at night too, but they dont bother me as they used to, also i get less jerks/ no jerks at all when i sleep on my face, but if i sleep on my back or left or right side i get them so i avoid these positions, i sleep only on my face, im accepting it more now after about a month and i think its related to low serotonin levels which is a neurotransmitter responsible for good mood, i forgot to say that paroxetine increased hypnic jerks and also caused me muscle twitches while awake, but after a while these sideeffects decreased, also it caused me insomnia in the first 2 weeks but its getting better too, i think u need SSRI like paroxetine and u gonna need it for a while cause i think these jerks are related to stress/ anxiety , by the way i left workout and coffee since it all started (1 month now) and i dont drink and getting away from muscular /cardio activity and even fine motor activity (like activities that requires fine muscular interaction and attention ) like video games or any stressful activity even watching bad news or horror movies before bed time will affect u even if it didnt affect u before and will increase ur jerks and DONT THINK about the jerks and if u cant control ur thoughts take something like alprazolam and watch any comedy show at bedtime ull find urself waking up in a maze, OMG DID I SLEEP AT LAST

    • Anonymous said:

      Xanax is so addictive it is unreal. 7 most addictive drug in the world. I do not believe it is only caused from stress or Anxiety after having this 3 years now. Could be 1000 things. Drinking makes mine 100 times worse and that is when I am as clam as I can be. I took xanax and jerked out of the bed. Everyone one is different.

      • hypnic_jerker said:

        xanax 0.25mg isnt addictive at all, im not telling u to take 10mg a day or more, thats how it becomes addictive, i took xanax 0.5 1 hr before sleep and i had jerks too at the beginning of my Selective Serotonin Reuptake Inhibitor “Paroxetine 20” and it was part of prescription, i refused to use xanax at the beginning but paroxetine gave me insomnia that was worse than the jerks itself i used to lie in bed eyes wide open for 6 hrs or so, xanax 0.5mg made me fall asleep without thinking about the jerks and thats how it helped me coz every time i used to lie i was waiting for it to happen and it happens, i quit xanax 4 days now and i didnt get a single jerk, now i sleep well, thanks to god, and jerks is a sign of sympathetic nervous system over-stimulation
        and ofc there are thousands of reasons for that but they all share the same thing which is stress, jerks it self is a kind of stress when u get it once at night ull hate the day u were born, stress may result of some normal activities that we see positive but overdoing it makes it negative stressful to our nervous system, for me it was over training with heavy weights before sleep and although that was my reason, the jerks didnt disappear when i left training and coffee immediately, it took me 2 months of quitting the cause, but my medications helped me a lot, i reduced the dose of xanax from 0.5mg before sleep to 0.25 then i stopped it in 3 days after reducing the dose and i didnt have any craving or urge to that dose in any mean, i mean i slept like a baby as if i took my dose, and yeah i used to take xanax and jerk some nights at the start of my treatment, but a week later it decreased, and sleeping position also helped me a lot, try to discover the best sleeping position that gives u weaker or no jerks and start ur sleep at this position for me it was sleeping on my face, as i mentioned until now sleeping on my back or side will trigger the jerks at the sleep start but during sleeping my family tells me that i sleep in all positions without any disturbance, so u need to just pass the sleep start without jerking once u fall asleep no jerks will wake u up because they wont happen, as u know hypnic jerks are also called sleep starts, and at last i just wanna help so trying different things better than trying nothing at all, try to find ur cure through researching but also seek medical help, if the medical practitioner was unable to help find another who is willing to help, and one thing that u gonna come out of ur research among sites that talks about hypnic jerks is that it requires u to quit stressful life style, and getting more rest/sleep which u already hungry for, so u Must find something that helps u to fall asleep and bypass the jerks and once u spend several days with adequate amount of sleep. the jerks will decrease/ stop

      • Anonymous said:


  17. Anonymous said:

    During sleep the sympathetic nervous system—the fight-or-flight system— relaxes, and blood pressure falls, muscles relax and skin vessels dilate, warming the body. The parasympathetic nervous system is more active. This may be why many asthma attacks occur during sleep, when the parasympathetic system causes bronchial tubes to constrict – See more at: http://drhoffman.com/article/healthy-sleep-recharging-your-batteries-2/#sthash.3qiGx346.dpuf
    in case of hypnic jerks, the sympathetic nervous system is taking over, due to over-stimulation the way that it wont rest or relax, and though it wont let parasympathetic system to get active and take u to deeper state of sleep
    both systems cant work together at same time, only one shall affect body at a time, for example erection or penis is initiated by parasympathetic thats why men wake up after a deep well sleep with strong erection “in case of healthy male”. while ejaculation is initiated by sympathetic nervous system, thats why many males wake up during wet dreams at ejaculation time, thats an example to show how our autonomic nervous system works
    so to prevent or decrease the sleep starts u need to get more healthy more dominant parasympathetic nervous system and help your sympathetic to relax and get some rest, if u can reach that goal u can let the hypnic jerks go away and never come back
    but the problem is the hypnic jerk wont let u reach that goal, it wont let your parasympathetic be more active than your sympathetic so u need to force it, im not telling u to live on sleep aids and relaxation maintaining pills like xanax, im just telling u that this is the only way to force ur autonomic nervous system to balance “between sympathetic and parasympathetic” to process as they used to before u get the jerks
    and these jerks are a sign of poor inadequate lifestyle so whatever that life style was u need to change it, bad sleeping habits like staying awake all night/ not getting enough sleep hours may b the reason, masturbation and watching too much porno/ long hours of sexual excitement will exhaust parasympathetic nvs, and can lead to the same issue too, drinking too much alcohols/ Nervous system stimulants like coffee, can be the cause, or even stress/ anxiety for long time
    so whatever the cause try to remove it from your life and hope u warm comfortable sleep at night.

  18. I have the exact same problem and I am completely TIRED of this situation. I have noticed that the only thing that would help with this condition is alcohol, but I know is not a good solution either. Are you still suffering from this or did you find a solution??

  19. i think we should try cortico steroids ive been using clonazepam and it doesn’t seem to be werking anymore such as prednisone we cant keep using benzos its not a solution einstien said if your trying the same thing over and over again with the same unwanted results its the definition of insanity I wish alchohol helped mine seems to make em worse.cortico steroids are different than testosterone they target the hypo thalamus where I believe this is all happening I think theres damage and until the inflammation is relieved I don’t think we can cure this ive done allot of medications flexeril and benzos so far the only thing that bring the inflammation down sleep seems to be causing the inflammation and I know serotonin for the people that the benzos are werking is the major playing role in this syndrome we either have to much or too little,ive realized the more sleep I get the worse they become not to say we cant sleep but I think we need to bring something else in with the benzo that helps us sleep and ween off the benzos slowly or just ween down the dosage and if they coe they have other cortico steroids to use if it werks for the people using benzos there could a common reason why they are occurring and we might benefit from know at least that right now we know nothing.

  20. it could also be a damaged nerve receptor in the brain that regulates how much serotonin is entering the brain because benzos block serotonin sssris increase serotonin,seizures can be caused by too much serotonin in this case we all screwed because this receptor or nerve that has been damaged can not be fixed by blocking serotonin it only regulated serotonin doesn’t heal the nerve,i believe the only way this can be healed is by shooting in the dark with the process ive mentioned above,ive stopped werking ive tried Depakote depakine roprininole beta blockers such as clonidine and proprananol with some success ive tried nac no success or very little melotonin some success magnesium calcium zinc vitamin b3,colostrum seems to stop jerks but I cant sleep must be the immuniglobulins in it ive sleeping on my back stomach side ive tried trazadone im gonna try Seroquel within the next week see what happens one person said it werked we shall see,ive tried the combination of depakine or Depakote with l tryptophan with no results some people it werks for not me because its a different receptor than serotonin that causes these seizures,ive noticed mine are on the right side of my neck because I can here ringning then it stops once I jerk or seiz or jolt surging w/e also tried calm forte no help everything you’ve read ive tried for a month in conjunction with clonazepam which all failed.i tried the ketogenic diet all fruits and vegetable with no success each diet 4 months the only that seems to help em is if you cut food 4-5 hours maybe more before bed I tried that bct therapy that those dumb ass doctors are always puching that crap is a joke for this went to mayo had a sleep study jerked all night long they didn’t even show up had tests up the wazooo only thing that came back was a high dhea sulfate and high 5hiaa urine dhea sulfate is a stress hormone blood test I have had heavey metals blood works done nothing came back positive so far.So the solution I put up top I think should be tried in conjunction with the clonazepam that’s all I have got left in my brain im exhausted from this cant werk cant do crap cant have a girlfriend it sux but by GOD im not gonna give up im gonna keep fight till I have the answers!

  21. Anonymous said:

    theoretically man cant live without sleep for more than a week, id like to know how could u survive all that time if u cant sleep at all

  22. There are men and women who have lived without sleep there whole lives but the one who is still alive is Thai ngoc a eighty year old man who lives is vietnam has been awake for 40+ years you can see the video on YouTube look up Thai ngoc insomnia or sleepless I don’t remember.The others who live without sleep are Paul kern after an injury in a world war,Al Herpin was born without being able to sleep at all died at ninety four I believe.there is a man in Egypt who doesn’t sleep 14 years I believe so far but that video wasn’t in English so I couldn’t understand it.Another women in Spain lived without sleep for thirty years her name was Eva Fernandez or something she yawn and wreck her hypothalamus and never slept again she died at fifty eight.There is one man man in Serbia me and him are friends he hasn’t slept in three years,o yes and the last man I know who doesn’t sleep is John Alan Jordan hasn’t slept for seven years although haven’t heard from the guy since he claimed he hadn’t slept for four or three years straight.

  23. There is another man who hasn’t slept for years in Ukraine

    • Obviously, I never said I literally never sleep. Everyone who has this issue knows how little sleep you get.

      • I have been dealing with hypnic twitches for two and a half years now and can attest to the fact that you can get sleep, but on the bad nights you can’t without medication. I was prescribed clonazepam but I find that etizolam, alprazolam, triazolam, and other benzo’s work as well. The problem: they are addictive as hell! I try not to take them but when I have to, I simply have to.
        The way my sleep twitch works is it cycles around. It will go away for up to three-five weeks at a time but it always comes back. Stress can bring it on, but it mostly just comes back regardless of what I do. On the really bad nights sleep is impossible without medication. On the not so bad nights I can get about four-five hours before the twitching takes over and relentlessly ensures there will be no sleep had. It is a shitty problem to have, but I suppose there worse things in life.
        I can’t imagine going completely without sleep. I felt compelled to share here today because last night I took three 25 MG Doxylamines, three 25 MG diphenhydramine’s, and three 3 MG melatonin’s and I still couldn’t sleep so I took an etizolam and finally conked out for a few hours. I read half a book while waiting for the pills to work, and it took me nine hours to get four hours of sleep! I was lucky this wasn’t a work night. It can be very frustrating.
        Best of luck to anyone dealing with this confounding problem.

  24. how do you get etizolam can you get it in america and how i heard it isnt as addictive as benzos because it is a theodiazipine

    • I just want to say that my hypnic jerks started after taking 5-htp. DO NOT TAKE 5-HTP. I feel like it may have caused permanent brain damage. I also have a theory that low dopamine plays into the twitching or may be the cause of it. I know they put Parkinson’s patients on a dopamine drug as they suffer from low dopamine.

  25. I started getting hypnic jerks after a month of supplementation with 5-htp. The supplement 5-htp raises cortisol (stress hormone). Cortisol and adrenaline can lead to a magnesium deficiency. Magnesium helps the nerves and a deficiency can lead to constant contraction of the muscles. Eighty percent of people are deficient in magnesium. Also, many people are getting too much calcium in the diet, as many foods are now fortified with it, and too much calcium will also cause a magnesium defiency. Also most calcium and magnesium supplements have too much calcium. Calcium and magnesium should be supplemented at a 1:1 ratio, not a 2:1 ratio, and most of the supplements are at a 2:1 ratio. I would recommend reading up on what Dr. Mercola has to say about magnesium.

    • To add to my above posts, anxiety drugs often have fluoride in them and the magnesium binds to the fluoride and causes a loss of magnesium as well. I know clonazepam is helpful to many but it can actually cause hypnic jerks. There is a guy who posted a you tube video of his hypnic jerks that he says are caused from klonopin (clonazepam) withdrawal. I’m wondering if clonazepam is one of the anxiety medications that contains fluoride, which leads to magnesium loss and possible defiency and if magnesium deficiency could be the root cause of our hypnic jerks. Just a thought.

      • To again add to my above posts, if you look up Dr. Mercola and magnesium, I think he was the one who talked about the fluoride so it may be worth looking up if you are concerned about this. I’m not sure if he mentioned other drugs that contain fluoride. I think tetracycline contains fluoride leading to possible magnesium defiency. Now that I think about it, my depression started after taking tetracycline as a teenager so maybe there is a link there. My brother took it as well and also suffers from depression and anxiety. I suffer from anxiety as well.

      • I have taken massive amounts and small amounts of Magnesium. Maybe….They work a little. Not much.

      • I wonder if there is anyone on here who experiences hypnic jerks who did not suffer from some type of chronic stress or anxiety before the jerking began.

      • I think I read on one of your posts that aconite helps the jerks. When I Google aconite and jerks it looks like belladonna is supposed to help this as well. Hope this helps!

      • No way. He should stay on the Klonopin. There is withdrawl form everything. Not that strong of a Benzo. Nothing close to Xanax.

    • I think the connection to cortisol is an interesting one. I think it deserves some attention. Thanks for bringing it up.

  26. I have been doing a lot of reading on the subject of hypnic jerks since getting these recently. I’m thinking of trying acupuncture as I read a post of someone who said it stopped their leg jerking.

  27. The doctor told me stimulants, like alcohol, caffeine, and I think smoking can make the jerks worse and also stress. Still waiting for a call back from the doctor as she is waiting for a call back from the neurologist. No meds yet. Tried iron and Ester C when I was awoken by a new jaw jerk where I may have bit my tongue, not sure, and I slept pretty good after that. I found two pills of clonazepam I had from several years ago and I took some a few nights back so I’m hoping the biting jaw,jerk is not caused by the clonazepam as I saw a YouTube video of a guy who has face twitching from clonazepam use/withdrawal/tolerance. He says he builds a tolerance and takes more and that this is a withdrawal symptom, but i’m wondering if he is just having it from clonazepam use. Don’t know. I’ve heard benzo can cause jerks though. It makes me afraid to take them, but I may consider it if the doctor prescribes it for me, but at this time the doctor will not prescribe it to me.

  28. I’ve researched the herb gotu kola before amd it is supposed to help the startle reflex and also anxiety. I know when I took it before the development of my hypnic jerks, I seemed to sleep better because I think it helps boost serotonin. I found it to help my anxiety. It is also used for seizures so I’m thinking it may help the jerks. The only reason I’m nervous to try it is because my jerks started after use of 5-htp and that also boosts serotonin and I don’t want to worsen my condition.

    • Just wondering what time of day do most of you take magnesium and how much do you take. I’ve taken it the last two nights, but only small amounts (a little over 100 mg of Natural Calm) because magnesium makes me tired. It seemed to work the first night, but not too much the second night. I’m also a little suspicious that the Natural Calm may contain msg since it contains flavorings, which I think I read is code for msg. I don’t want to take something with msg since I am sensitive to it and I think I read it could worsen the jerks.

      • Not the cure ill tell you that . Try sunflowers seeds seriously

      • Sunflower seeds. That’s a good idea. Definitely worth a try. I read somewhere else to try them but don’t remember what they contained to help the jerks. Was it magnesium?

      • Get a bag look on the back

      • Also, I tried Ativan last night and it was definitely a better night than the previous night. Jerks were less intense, less widespread and just less jerks in general. Also, I had my first experience with buzzing in my ear and some spasming in my ear during the day, the day before. I think the electrical, buzing sound has been described by you as exploding head syndrome. I had also had my first experience with waking up gasping that same night. Not a fun night! The gasping must go along with the theory that the body thinks it is falling or dying, I guess. I sure wish my body didn’t think that since my bed is supposed to be the safest place I can be. I don’t love bedtime the way I used to before this all started a couple of weeks ago. It’s sad! Just struggling to get through all of this right now, but at least I finally got some sleep thanks to the ativan and finally feel pretty rested. I stopped the vitamins all together last night bease it seemed like they were just making the jerks worse. I was taking vitamin C, iron, a mult-vitamin multi-mineral, magnesium, calcium and drinking some gatorade. I’m wondering if the 5-htp caused some serotonin toxicity which is causing the jerks because also have a slight tremor. All of the other serotonin supplements I took before never caused the jerks, so I don’t know if it’s some other type of damage. Hyland’s Bioplasm homeopathic remedy helps with my trembling feeling in my legs and the mag phos in it is supposed to help spasms I think.

      • I’m reading back the post I just left and realized it’s a little confusing. The gasping and ear buzzing was not the night I took ativan. It was the night before. The ativan helped me. My only concern is that when I looked up the side effects for ativan, generic name lorazepam, it had side effects that sounded like possible hypnic jerks, and I definitely don’t want something else worsening the jerks for me, since this all started after taking 5-htp.

      • Does anybody else on here suffer from can stand hunger. My body wants to eat every hour and a half, and a lot of food, like a full meal. I don’t give into it because I don’t want to gain too much weight but I think it could be caused by high cortisol or hypothyroidism. I also get a lot of headaches, which could be from high cortisol. I wonder what connection cortisol (stress hormone) plas into the hypnic jerks since mine started after taking the supplement 5-htp, which raises cortisol. I thought I was experiencing some adrenal fatigue before this all started, which involves cortisol issues. The 5-htp might have just pushed my body over the edge when it raised my possibly high cortisol even higher. Anyways, I’m supposed to get blood work done to check for vitamin deficiencies, thyroid problems, and blood sugar problems so maybe that will tell me more. Diabetes runs in my family but I feel like I am more hypoglycemic. I also used those urine test strips to test for sugar in the urine and was in the clear so I guess I will find out for sure with the blood test.

      • I surely noticed that I have more violent jerks if I have headache. Try to fix your headache and hopefully your jerks will stop

      • I’m pretty frustrated though, since my doctor gave me no pills to help me and it’s been a week now that I’ve been waiting for her to call me because the neurologist was supposed to call her back and she was going to call me.

  29. My frustration level has reached an all time high. My doctor called and said the neurologist said there’s no treatment for hypnic jerks because it’s normal and she won’t even give me a sleering pill. At my appointment she said stress and anxiety makes it worse.

    • Can anybody tell me the name and location of a doctor/neurologist who is helping them with their hypnic jerks and or exploding head syndrome? I live in the San Francisco Bay area, and i have Kaiser Permanente insurance, but I might be willing to travel and pay out of pocket at this point if there is a doctor out there who would take this seriously and prescribe something to help. Thanks!

    • Tell her no shit . Get on anti anxiety but not Xanax ….

      • I asked the doctor for some klonopin and she said she won’t give it to me. She said it crrates dependency, but at this point, it’s worth the risk to me. I’m so frustrated. I don’t understand why she just doesn’t give a shit. Everytume I talk to her she just tells me she won’t treat it. Any suggestions? Has anyone else faced this situation?

      • She is an idiot .change doctors immediately . The net doctors at rush medical put me on it . It is default for hyping jerks . I was videoed for two hours and put through hours of tests . Diagnosis . Klonopin . Go to a psychiatrist they will give you anything and know about those meds.

      • Tell her not sleeping creates a dependency to commit suicide. Honestly with the Internet there is no need for doctors other than for surgery. Useless now.

  30. Thanks for the advice! The doc does want me to do a sleep study but only to rule out sleep apnea, which I know is not the cause since the twitching starts before I even fall asleep. She also wants me to do a blood test, but keeps telling me the jerks are normal and she won’t give me anything for them. She did talk to the neurologist about me but I guess he’s the one who told her that they’really normal. Not sleeping is not normal, in my opinion. I mean, who doesn’t give sleeping pills to someone who can’t sleep? Anyways, I looked on Kaiser’s website and it looks like there’s only one hospital with a neurology department around here, so hopefully there’s more than one neurologist to talk to who might have a clue as what to prescribe.

  31. I was thinking about going to the pychiatrist also. Hopefully they will help me.

    • Not sleeping can totally make you feel suicidal, for sure.

      • I read somewhere that glycine in combination with gaba causes paralysis of the muscles during sleep. I can’t for the life of me find the article online again, but it was thought that they could develop drugs in the future to help the jerking during sleep. You can buy both supplements at any health food store or online though. I read a post somewhere also where someone said they were experiencing night jerks and took the supplement ashwagandha for one week and they completely disappeared. I know ashwagandha is supposed to help neurogenesis, which is some kind of growth of brain cells. It’s been awhile since I read about it, but it is an adaptogenic herb. Aptogenic herbs are thought to bring the body back to homeostasis. Ashwagandha is supposed to be useful for anxiety and depression and I think it boosts serotonin also. Adaptogenic are supposed to help the body deal with stress. Another person posted that accupuncture totally got rid of their leg jerks at night. Some people have even suggested hypnosis for this problem but I don’t know of anyone who has tried it yet. Hope this helps!

      • GABA doesn’t normally cross the blood brain barrier if taken orally. There is however equivalent of GABA (aka Fenibut) that crosses blood barrier and helps to control the jerks. This can be bought online

      • I think I also read that Huperizine A helps the jerks. You can buy it online also.

      • I did not know that Gaba doesn’t cross the blood brain barrier. Thanks for the info! While researching this, I found an article that states that the traditional Korean dish, Kimchi, is fermented with a bacteria called lactobacillus hilgardii, and this bacteria is supposed to be a form of gaba that can cross the blood brain barrier. I had heard on Dr. Oz before that Kimchi boosts serotonin and therefore, it would give you energy. I might try the phenibut also.

  32. Hi my friend.. i have been unable to sleep naturally and also unable to work for 11 years due to a bang on the head.. i have a diagnosis of propriospinal myoclonus at sleep onset but i have the extra complicatio. Of my brain not being able to make the transition from wake to sleep without various drugs.. zopiclone being the most effective except it doesnt control my waking where i get lots of the seizure type activity head vibrations internal rythmic body sensations and confusion with millions of racing thoughts as i wake.. which can be many times in the night where i have to keep topping up on zopicline… i understand your frustration… Dean

    • Dean,
      Thanks for checking into the blog. I have the exact same diagnosis as you, but the cause of mine is still undetermined. I’m sorry for your difficulties. It sounds like it’s been a very tough 11 years for you. I hope things turn around, and I can certainly identify with your struggles. Take care.

      • I read that taurine helps the jerks some. I wish we could all just find a cure for this.

      • It seems like a lot of people who have posted have tested low for iron. Restless legs syndrome is also caused by low iron. Someone said they have periodic limb movement and restless legs and thinks the two are somehow linked. My doctor said I have hypnic jerks and I feel I may also have restless legs syndrome, but the doctor is waiting to see if my iron stores are low on my blood tests. So I’m thinking low iron may be linked to hypnic jerks. One person who reported hypnic jerks tested in the low normal for iron (ferritin) levels but her iron levels had dropped significantly from a previous blood test. Celiac disease causes the body to be unable to absorb iron properly. Celiac disease is when your body can’t handle gluten. One person reported that they’really hypnic jerks went away when they stopped eating gluten. One more thing I would like to add in case anybody wants to try it, is that one person cut out high fructose corn syrup and msg from their diet and that stopped the jerks for them. Hopefully this might help someone! Good luck on your journeys! I know how difficult it is to deal with hypnic jerks since I also suffer from them.

      • After reading thousand of posts iron has nothing to do with it . I took it and did nothing . It is central nervous system related . Vitamin d on the other hand can’t hurt

  33. You need to watch your vitamin D levels. You can get too much of it. I was doing a trial of large doses of vitamin D to raise my blood levels, and I tested out of the range in the high level. It’s pretty rare, but it can happen.
    I know I take a lot of iron too, but my levels are pretty normal. Sometimes, I will take iron in the middle of the night and it helps and sometimes it doesn’t.

  34. I’ve been having intense hypnic jerks every night for the last 2 months. I manage to get 3-5 hours on some nights, but occasionally have nights where I don’t sleep at all. I’m really struggling at work and I can’t even make plans with people anymore because I never know if I’ll be able to sleep through the night. I used to do a lot of running, biking, hiking, etc. but I don’t have the energy for any of that anymore. All of my energy goes into trying to maintain a job right now. It’s discouraging and frustrating to see how long some of you have been dealing with this issue – I’m sorry, that must be awful. I’ve been to a few doctors, but they don’t seem to take it seriously. I was prescribed ambien and was basically told to wait it out until it passes. Starting to lose hope that it will pass, though. I don’t like the way ambien makes me feel the next day, so I’ve just been pushing though it so far and hoping it’s temporary. I read that magnesium supplements can help but they haven’t really done much for me.

    • I totally feel your pain. I feel the exact same way as you do and I am mourning the loss of my old life right now. Somehow we will all get through this I’m sure as many others have. I found a couple of klonopin in my cabinet that I had from years ago and I actually slept around eight and a half hours, I think, which was huge for me because I only get a few hours of sleep without it every other night and feel awful all day. I’m also a single mom and don’t have any help at home, so it can be really difficult. I think I also need to change doctors, since my current doctor says she won’t treat hypnic jerks since they are normal and won’t even give me a sleeping pill. I’m doing a sleep study tomorrow so hopefully that will help my case. I think I also have a rem sleeping disorder, because sometimes I move my hands in my sleep, dreaming about opening a water bottle or opening a door knob and such. I also feel like I may have restless legs syndrome but my doctor is waiting on my blood tests to see if my iron is low. Anyways, I read a post where someone said they took Japanese knotweed tincture and after two weeks, the jerks stopped. Someone else said a week on ashwagandha took their jerks away. Another said 3 500 mg capsules (1500 mg total) of DL Phenylalanine 2 to 3 hours before bedtime gets rid of their jerks. They said after the third or fourth night of NOT taking it, the jerks will return. Someone else said accupuncture got rid of their leg jerks. So it seems like some people may have found answers. I really wish I could find a doctor who would prescribe me Klonopin though since the night I took it was the best night’s sleep I’ve had by far. Don’t give up! There are a lot of different supplements you can try that might calm down your nervous system and/or help you deal with stress. Skullcap helps seizures, gotu kola helps the startle response, I used to take kava for sleep before this all started and it was very sedating and helped get me to sleep or even take a two hour nap, but I couldn’t take it during the day as it was incredibly sedating. Some say kava can cause liver problems, but some say it’s because some companies went cheap and used the leaves instead of the root. Rhodiola rosea really helped my sleep deprivation before my hypnic jerks started, I’m just afraid to take it right now because taking the supplement 5-htp is what caused all my sleep jerks. Just hang in there! I think it’s just going to take some time for us all to get used to this and accept things the way they are.

      • But seriously, the rhodiola rosea used to make me feel like I had gotten enough sleep when I hadn’t so it might be worth a try. It’s supposed to boost serotonin and dopamine and help with stress. It’s known as an adaptogen. There are many other herbs known as adaptogens, and they help the body deal with stress. You can google it.

      • I had my sleep study last night, and I’m wondering, have all of you had a sleep study done? I only could sleep for about two or three hours, and for some reason I didn’t experience very much jerking like I usually do. The technician said she thought she saw an apnea followed by a movement right before she woke me in the morning. I don’t think that movement woke me, so I’m not convinced that sleep apnea is the cause of the jerks that are keeping me awake, since I have them before falling asleep and am even feeling them during the day today some. Anyways, my point is that I never would have thought that I could have sleep apnea, or that they could be causing any jerks, so I suggest everyone have a sleep study done just to rule that out, if you haven’t done so already.

      • I have had 3 studies. And I am not sure even if you do not show apnea, it isn’t the cause. Two studies showed none and one showed moderate. I sleep with CPAP and now when I take it off I start waking up. It lowers your sympathetic nervous system which helps anyway. Everyone will be on CPAP in the next 15 years. TRY THIS. Go GET BIOTION the Vitamin B. Take 5 MG in the day and 5 about 15 minute before sleep. I may be on to something here everyone..DO not take it with a multiple vitamin take it separate.

  35. This experience is very similar to mine and a lot of others on here.
    All of my plans basically depend on the amount of sleep I get the night before. It makes it extremely difficult to live your life.
    Does Ambien help the jerks at all? No sleep medicine has ever worked for me, because I still jerk before I fall asleep and wake up.
    I would find a different doctor. You know what is best for you, and you need to find someone who is sympathetic. Be prepared when you visit a doctor to “prove your case”. Feel free to print out excerpts from this blog or articles that describe what you are experiencing, so the doctor can understand better.
    Have you tried large doses of Ester-C with appropriate doses of iron? Some find relief with that. Take a lot of the Ester-C, but not too much of the iron. It can be dangerous.
    Have you tried Klonopin? It’s the only medicine that has ever worked for me. I don’t like it at all, but sleeping is better than not sleeping. Let me know if you have any other questions. Read through the blog. A lot of people recommend things to try, and some work. Everybody is different. Take care and don’t give up hope. You are not alone.

    • I have ZERO side effects on Klonopin. You have to take it for a few days. I strongly believe it slows the jerks. I wake up full of energy.

  36. So you think that the cause of hypnic jerks could be sleep apnea also? And the CPAP along with 5mg of biotin twice a day seems to be helping your jerks as well?

  37. Any tips on how to manage a full-time job with this problem? I go into to work on no sleep some days because I know I can’t just keep taking sick days. My memory and concentration are awful, my reaction time to people’s questions is embarrassingly slow sometimes, and I’m sure I look sleep deprived, but I just don’t know what else to do. My jerks have only been going on for a little over 2 months but it’s been pretty much non-stop and I’m not sure how much longer I can just keep pushing through it. It is wearing me out physically and mentally.

    I read on here that it could be stress-related, and someone also mentioned that it could be a delayed reaction to stress. I was in graduate school and working a full-time job from 2011-2014 and that’s definitely the most stress I’ve ever been under, but I never had any trouble sleeping during that time. Seems odd to me that I’m having this problem now that things have slowed down a little. I don’t know if it’s a delayed response or just unrelated.

    I know Klonopin seems to work for some people but I have a difficult time with most medications and am trying to find a more natural solution, although I have not been successful yet.

    • I have a really hard time with medications also because I have a really low tolerance to things and usually have many side effects. I have to say that Klonopin is the only medication I’ve ever tolerated well and liked. I take a really small dose (1/4 of a 0.5 mg pill) to avoid drowsiness). I feel like I actually have more energy than usual on this dose and the only side effect I notice is mild constipation, which doesn’t bother me at all. After reading a lot of posts, it seems lIke magnesium seems to help people the most as far as natural things go. I would also recommend taking a multi-vitamin. Someone said they took oral magnesium along with magnesium oil transdermally and said it got rid of their jerks in two days, but they started out at a really high dose orally, 1200 mg, and then tapered down and I think they ended up stopping the oral magnesium altogether at some point and the jerks wereally still gone. 1200 mg seems like A LOT though, so I don’t know that I would start at that dose or ever take that much. I’m not sure if it would hurt you or not to take that much, other than loose stools, but you can add calcium to help with that. Others take vitamin C and iron. Epsom salt baths are also a great way to get magnesium. Hope you can find some relief. I know how difficult it is to function without sleep and how depressing it can be. I found rhodiola rosea helped me feel like I had slept enough even when I hadn’t.

  38. According to new research from London Clinic, this problem is due to stress. Your muscles have not relaxed, before you go into deep sleep, and they therefore react to the dreamlike pictures that arise before one goes to deep sleep. In other Words, because of stress, the body and mind is not synchronized.

    I personnally have had this problem for more than a year now, and for me there is a clear correlation between stress and jolts. I have embarked on de-stressing activities, and this coupled with the realization of the root cause, has made a tremendous difference for me and my sleep.

    • If the muscles aren’t relaxed, then thoeretically, wouldn’t a muscle relaxer help?

    • Has anyone tried any muscle relaxers? Wereally they at all effective in treating the jerks?

    • What kind of destressing activities have helped you?

      • Well, i did not realize that my body was tense for a long time. After somre time though i began to notice slight buzzing in my body which now i know is some kind of stress.

        Now i practice positive thinking at bedtime, visualizing how i good a sleeper i am, do some reading, meditation, or cuddle my wife. Human contact is extremely calming. If the jolts happen anyways, twice in a row, i get out of bed and go watch tv or something. That Usually takes me out of the negative circle of falling asleep being jolted awake.

        Apart from that i try to take stress away from my daily life.

      • Anonymous said:

        Jacking off does not help I’m positive stress plays zero role in this . ZERO!

  39. I just don’t buy that it’s because of stress. Every idiopathic syndrome that the medical community cannot figure out gets blamed on stress simply because they cannot figure it out.

    • What do you think it is caused by? Do you have any theories?

    • Anonymous said:

      Spot on . Stress is not the cause period . Obesity however maybe . It is a breathing disorder where your body is waking you due to obstruction whether a sleep study shows it or not. If your central nervous system is in tune with your body hyping jerks may be more prevelant . I am betting most all with hyping jerks are at least 15 pounds overweight . As Americans have gotten morbidly obese hyping Jerks are exploding. After dealing with lyrics for 3 yes now seeing the best so called doctors in the country that is where I am leaning now . Everyone will be in a Cpap soon .

      • Im not overweight, so obesity is not the cause PERIOD! Why so aggressive mr. anonymous????
        My experience is that stress can also be emotional stress. It takes effort, time and acceptance to ease it off. If youre lying in bed hoping it will disappear right away, or that someone invents the magic pill, then, as I see it, you are actually emotionally stressed. ‘The battle’ tenses you up, even though your are not aware of it, because you have become used to it. Now I know mine started because i developed some health anxiety. This causes emotional stress. Things really started to change when I accepted, that sleep deprivation is bad but there was really nothing i could do about it. Paradoxically, that is where the jolts became less severe.

        For a long period I believed something was broken in me, however, with time and experience, i realised that there was nothing broken. It was a state of mind that was wrong.

  40. Thanks for the advice! Unfortunately, I have nobody to cuddle, but de-stressing like that, especially at bedtime is a great idea. I feel like I have a buzzing in my legs when I am sitting or lying down. Maybe it is stress also. Last night, I kept jerking awake, possibly from MSG, but I finally reached over and popped four Hyland’s Bioplasma tablets and the jerking stopped until about 5:30 when I had to get up to use the restroom. The jerking started up again after that, but I think maybe the tabs had just worn off and maybe if I had taken more it would have stopped. Or maybe it was just a coincidence. I do find though, that the bioplasma pills help the buzzing in my legs die down some, so it is useful for that!

  41. May I recommend Sasha Stephens book ‘Effortless sleep’. That has really been helpful to me

    • Furthermore, stress or anxiety actually leads to dehydration, and loss of electrolytes, this definetely also plays a role in terms of jolts. It is an evil circle, because dehydration can increase anxiety levels. The bioplasma you took can therefore maybe explain why you slept through the jolts when you took them. It is though pivotal to get to the root cause of it, which at least in my case i emotional stress

      • Thank you for the book recommendation, I will definitely look into it. So you think the Bioplasma helps me because I am dehydrated? I forgot to mention that the Bioplasma only works in combination with 0.5 mg of ativan, not by itself, so my root cause may be anxiety and I suspect possibly high cortisol levels, which could be one in the same, I guess. But yeah, I took 0.5 mg of an ativan last night again, woke up with a jerk, took 4 pellets of the Bioplasma and had no more jerks. A cat woke me running on my roof at 5:30 or so, so I took the trash out, and when I went back to bed I was having little twitches even though I wasn’t falling asleep. My doctor said dehydration can either cause or make the jerks worse, I’m not sure which one, but I did not know that dehydration causes anxiety, so thanks for the tip.

  42. I said dehydration causes anxiety, but it is the other way around. Anxiety and stress causes dehydration. So if I drink more water, or maybe gatorade or some other sports drink, maybe I could fix my problem. Just maybe. Thank you so much for the advice! It gives me a lot to consider. But I also need to fix my stress and anxiety also to help get rid of these jerks I’m sure, and lower my cortisol levels. It’s a lot to think about!

  43. And I need to replace electrolytes too, it sounds like. Any advice on ways to do that? I guess the Bioplasma helps with that, but is there another way I could do it maybe in conjunction with the Bioplasma? I was thinking Gatorade or a sports drink, but I probably don’t need all that sugar. What are electrolytes anyways?

  44. I also think I suffer from hyperhidrosis, which causes my hands to sweat a lot mainly when I get nervous or hot, so this is probably causing me to lose even more electrolytes.

  45. My doctor says all my labs are normal and we are still waiting on the vitamin D results. My ferritin level is at 24 snd 21 would be considered too low, so I’m wondering if this is a factor in causing the jerks. It seemed like I had more energy the day after I took iron and Ester C at night, but it is probably just a fluke. I think it would take at least a few weeks to see any kind of result, if not more. Anyways, maybe I should supplement with iron and Ester C even though my doctor says all of my labs are normal. When researching restless legs syndrome, it looked like people tend to sufFer from it when there ferritin is either at or below 50 I think and maybe even higher. I do have a trembling and spasming sensation in my legs when sitting or lying down, but I guess my doctor is no longer concerned since my ferritin is “normal”. I do believe I have hypnic jerks as well. Anyways, I took some Hyland’s restful legs tablets yesterday and last night and it seemed like I had more mild jerks although, I’m not sure if the frequency was really reduced. Maybe I will keep trying them since they are supposed to help with twitching and jerking legs, even though I have jerks, twitches, and spasms all over. I also noticed a couple of other people posted that their iron was in the low range of normal so maybe there is a possible link with hypnic jerks and a low, normal ferritin (iron) level.

    • Anonymous said:

      All that stuff has been tried. Try Biotin 5 MG in the day and 5 one hour or so before bed. Get back to me.

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