About

I’m a man in search of a dream, both literally and figuratively.

My dream is to sleep again.

In the solitude of that sleep, I will be able to dream and allow my brain and body to heal and enjoy life the way it’s supposed to be enjoyed.

It sounds simple, doesn’t it? Sleeping. Just close your eyes and drift off into another world and leave your current one behind.

For some of us, it’s the most difficult part of our lives.

I cannot sleep like a normal person because of muscle twitches and jerks at the VERY second I begin to fall asleep.

Every single time I begin slumber, a twitch and jolt from my rebellious body wakes me up.

I’m not alone either. Some call it hypnic jerks, or sleep myoclonus, or sleep starts. I call it torture.

This blog is to bring those of us suffering from this condition together. This is our voice. I’m finished suffering by myself and not knowing how to explain this to doctors or others. Let’s help each other gets our lives back. We don’t have to feel alone and helpless anymore.

1756 thoughts on “About”

  1. Interesting article on cortisol and the effects of disrupting the normal cycle of cortisol levels:

    https://experiencelife.com/article/the-cortisol-curve/

    So far this makes the most sense to me about why I’ve been suffering from this condition for over 15 years. It addresses how my stress/anxiety and alcohol use could perpetuate the problem but also pointed out a few new things. One of the things that frustrated me the most was how I’d have periods where the jerks weren’t as bad and then out of the blue they’d become worse again. I’d become excited when they’d get better thinking I was doing something right but then boom they’re worse again. As far as I could tell it followed no pattern or time line.

    Now after reading this article I’ve identified several things I’d been doing that could be disrupting the normal cortisol cycle. Specifically the low carb diet, which I’ve done for a LONG time, but also my intense focus of staying on schedule. At times randomly I would eat more carbs and perhaps that helped my “better” times. I also went through all 3 cortisol levels referenced here and never realized that was what was happening. Seems my “bad” times would usually end with adrenal fatigue before I would start cycling through them all again.

    It’s really worth a read if you have the time. Hope it helps some of you.

    • Are u taking anything to help u sleep? If so what? I’ve just developed this 3 months ago after a really stressful time. I’m a mother of three and it is debilitating my life.

      • Anonymous said:

        Try eating black pepper and garlic.

      • Ok I feel compelled to write something here.

        In back tracking through recent posts our friend Jen has been having a heck of a time dealing with hypnic jerks and 3 children, one of which is a new born. I’m 15 years removed from my last endocrinology course so don’t know how post partum affects this.

        That being said Jen had mentioned that she’s tried the following: klonopin, seroquil, trazodene, Mirtazapine, ambien, and others. These drugs are either a form of sedative or antipsychotic. I believe she said the klonopin helped as have others on this board. klonopin is a tranquilizer with the potential for dependency thus not a good long term strategy. She didn’t comment on whether the anti-psychotic drugs helped or not so let’s say they didn’t.

        So what we have here is a mother of 3 suffering from anxiety that can get sleep by using a tranquilizer. My guess is when the drug wears off the jerks begin again. I was able to obtain similar results for years using alcohol. Then we hope that one day we’ll wake up and our problem will be gone without changing anything else. For some that may be but it has not been the case for me. So while I’m sure the suggestion of garlic and black pepper was made with good intentions, I find that laughable. What exactly is that supposed to do? All of us on this board are deficient in garlic and black pepper? That’s why we are suffering from these jerks?

        This idea that we can take something, whatever it is, and our jerks will go away is a fallacy. Bryan2 said it best in that we need to make life style changes if we want this to go away. We are doing something, providing a stimulus likely daily that is leading to these jerks. My theory is that it stems from a disruption of normal cortisol cycles due to stress/anxiety. Anxiety is the common theme on all boards dealing with hypnic jerks. You can take all the drugs, supplements, and garlic you want but if you have unchecked, uncontrolled anxiety you are still going to suffer the ill effects from it.

        It is a known fact that people with insomnia have increased secretion of cortisol through sleep-wake cycles. Anxiety leads to higher levels of cortisol, which will keep you jazzed up til you run out. Then you crash. If this occurs during the day your body starts making more and will probably peak sometime in the night, keeping you awake when you’re supposed to be asleep. Learn to manage your stress and read this article if you haven’t to see how to help re-establish normal cortisol cycles.

        https://experiencelife.com/article/the-cortisol-curve/

      • Anonymous said:

        healthyeating.sfgate.com/effect-black-pepper-brain-8604.html

        http://www.livestrong.com/article/526381-raw-garlic-for-depression-anxiety/

      • Anonymous said:

      • At best I can call these two references weak in supporting your argument. The first starts off saying there’s little to no evidence to support garlic helps anxiety and the second suggests garlic improves memory. I don’t need to a memory boost to know what kind of hell living with this condition is.

        But you miss my point. I’m not refuting the health benefits of garlic or other nutritional foods/supplements. And while I might sound harsh I feel people are wasting their time trying to find the next magic bullet to fix this. Referencing Jen again, she mentioned she tried 6 or more different medications to help this. According to her she’s getting several hours of drug induced sleep a night. Is it that her doctor just hasn’t prescribed the right pill yet? Or rather is it that these drugs are either not going to do more than they have or are treating the wrong thing? My opinion is if drugs were going to work they would have already. Help get you to sleep? Sure. Fix the problem? I doubt it.

        Proper nutrition is important for health. Supplements and other things have their place too. But telling someone that eating garlic and black pepper is going to resolve this condition is ludicrous.

      • Anonymous said:

        They both increase serotonin levels, that was my point. These are not the only articles that exist that support that. Eating black pepper and garlic might be helping me correct low serotonin levels thus, helping my jerks.

      • I concede your point anonymous.

        However, WHY is your serotonin level low? I’m beginning to sound like a broken record here but most boards, including this one, cite stress or anxiety when they talk about developing or having jerks. I found this quote off the livestrong site you referenced earlier:

        “Stress is a common cause of low serotonin levels, resulting in a snowballing feedback cycle of disrupted sleep, depression, anxiety and fatigue during the day, according to clinical psychologist Joseph M. Carver.”

        So my point is looking for something to take while ignoring the cause is the wrong approach. If a person is over weight they can add Ginseng or other natural weight loss supplements to their diet, but if they continue to eat the same way and not exercise it probably won’t do much good.

        So perhaps what you said will help serotonin levels. What did it do to help reduce one’s stress and anxiety? Sure you’re boosting your serotonin but what did you do about the reason it dropped to begin with?

    • Hi kdoc. I’m 51 and I’ve started suffering from this condition 3 weeks ago and have been off work since. I think it is in relationship to chronic fatigue also. Cannot sleep due to jerk at the exact time of drifting off. I can only sleep for about an hour until something awakes me, presumably another jerk. Have been thinking I have had everything from a brain haemorrhage to mental illness.

      After weeks of awaiting blood test, being turned away from A&E, being fobbed off by doctors I finally found your blog. My GP has now prescribed Mirtazapine. This seemed to work on the first night, but last night, the 2nd night did not help. I’m now again dreading tonight. I’ve had half a dozen nights with less than 1 hour sleep and it is killing.

      Thank you for your blog which has helped me understand I’m not going insane to about to die.

      Mark

      • That’s how hot all started with all of us. Before bed drink a big glass of water and report back please.

      • Try it, but you’ll just end up going to the toilet more. I’ve tried 1 glass 2 glasses and nothing but worth a shot. The adrenaline surges makes you want to go to the toilet more. How much mirtazapine are you taking? The lower dosage like 7.5mg.thr the better for sleep.

      • Mark H, mirtazapine did not help me either at first, but once the jerks settled a little it helped but that was close to 6 months. Zopiclone,(sleep med) got me through the first 6-9 months combined with mirtazapine. Read some of the older posts, there is plenty of information on what people took, what worked and what didn’t. Remember, everyone is different. Staying off heavy benzos helps but you might need them if it gets really bad and you have no other choice. I started on Valium, then Ativan to get me through also. It’s one of the worst conditions, and I got it out of the blue also.

      • Thank you Mark and Ck for your responses.

        I have been drinking a lot more water than I usually do and now always have water beside bed. It does make he go to loo a lot though.

        The GP prescribed 15mg mirtazapine just before going to bed at my normal bed time 10.30. She also suggested not trying to nap or sleep during the day. Last evening was very hard so I went to bed at 8 thinking to myself you have to sleep or you’ll die. This seemed to let me sleep – I have two jerks, one was when trying to nod off, the other was almost like immediately after nodding off and it was a tripping over and falling dream type thing. I woke at 10 and then took the mirtazapine and then was successful with 4 or 5 periods of dream sleep with no jerks until morning.

        I had been using Nytol diphenhydramine for a few nights which helped a little. I might need to try again in conjunction with the mirtazapine (perhaps just 7.5 mg if that is better)

        In addition I have booked in to see a hypnotherapist today. Not hopeful about that though.

        Thanks again for your support. It’s good to know that you’re not alone. I will keep going back through the blog posts too. I’ll report back soon.

      • Hi Mark H; You might want to try a sleep study before spending time and money on anything else. Sleep apnea is the culprit for some of us here, including me. I had that same jerking as soon as I started to drop off, sometimes went on for hrs. Was finally diagnosed with sleep apnea. Many doctors don’t think of it if you’re not overweight and don’t have the most common symptoms. Now after 8 mos. of cpap, on most nights, the jerking, restless legs and other nerve problems have subsided. Now I only get the jerking when I’m very stressed out from my husbands major health problems. I’ve also gotten some relief from chronic insomnia, but it took time and patience. Some people give up too soon.

  2. Hi Jen

    There are numerous posts on this board with regards to taking things to help you sleep. Anything from magnesium supplements, to herbs, medication, and others. In addition there are numerous opinions on why we are suffering from these hypnic jerks. I invite you (when you have time) to read the different posts on this board because maybe you’ll read something that will strike a cord with you.

    My current opinion is that this stems from a disruption of the normal cortisol cycles due to stress but also other factors. Stress/anxiety seems to be a common theme among suffers of hypnic jerks. If you read my previous post I put a link for an internet article that sums up what I’m talking about in regards to cortisol and offers advice on how to restore the normal cortisol rhythms.

    I happen to be a health care provider and know that there is no one answer to solve all conditions. Two people can present with very similar problems but have totally different causes of their condition. That’s why I suggest you read the article I posted and see if that makes sense to you. If not, please read what some of the other people have posted as they might have a better suggestion for you as to what to do.

    I have great sympathy for anyone who has this. I myself have been dealing with it for over 15 years. So don’t take this the wrong way, but I feel it’s a mistake to ask “what can I take to help me sleep.”. the correct question should be “what is causing this to happen?”. In understanding what is going on you can effectively correct your problem. Taking something treats a symptom and ignores what is the cause, thus not fixing it. If you slept normal up until 3 months ago something has happened caused this change. What stimulus or stress are you introducing that is causing you to have hypnic jerks? You mentioned you are a mother of 3 and are under stress. To me, it’s very plausible you have a problem with your cortisol cycles caused by stress. You need to restore proper cortisol cycles and better manage your stress. Read the article.

    Good luck

    • Hello, are you on any medication at the moment. Find your article very intetesting.

      • no medication. aside from “self medicating” with alcohol, i’ve never taken any medications for this condition. i’ve found a tiny benefit from taking magnesium coupled with an electrolyte drink. anything else supplemental i’ve taken had little to no effect.

        i currently am taking high doses of omega 3 and multi vitamin for the vitamin C and B. this is NOT to directly help me sleep better but rather to support my adrenal glands, which i believe have been malfunctioning for years.

    • Hi guys, everyone is different but for me the cause of my twitches/jerks are definitely linked to anxiety, SEVERE anxiety. I had a sleep study done recently and only managed to get two hours of sleep. Since I’ve been quietly following this post for a while, I know my results of the study won’t reveal much. Still haven’t received the results though. But out of desperation, I’ve been doing anything and everything to find help. Anyway, life has been so hard to live when sleeping only a few hours every night. I mean a few months ago, I had to hit the snooze button on my alarm clock 2 times to wake up. Sleep used to be my best friend!!! So I’ve been praying desperately to Jesus! My church has been praying relentlessly as well. Just as I was going to go to a treatment center, another option was given to me. I believe an answer to my prayer. It’s not medication, it’s not supplements, it’s not food. Rather, it has more to do with the brain and anxiety. So I had brain mapping done by a neuroscientist. Ive been to three sessions and surprisingly, I’ve been feeling less anxiety during the day and last night I even cut my 25 mg seroquil in half and was still able to sleep and better than the night before. My twitches/jerks felt lighter and fewer. I actually felt more rested the last two nights as well. I’m going to keep trying it out and I’ll check back in about a week or so. If this is the cure, you all will definitely be one of the first to know! Pray that this is the cure. Please seek Jesus for all of us because He is the only one to cure us all! Heal me, LORD, and I will be healed; save me and I will be saved, for you are the one I praise. -Jeremiah 17:14

      • That’s great Jen. I’m nearly convinced that unchecked stress/anxiety is the key to fixing this. If brain mapping works to reduce your anxiety, then keep it up and with time I believe your body will heal.

  3. Hello again. It’s me, Captain Cortisol. I see that I’m beginning to take over this board so this will be my last post until I have something more to tell you. Hopefully good news.

    I think I finally formulated a solid argument for my theory that our problem is due to a disrupted cortisol cycle. While there can be different reasons for this I believe the primary reason is stress/anxiety. So here it is, please let me know what you think.

    Cortisol, also known as the “stress hormone,” is released by the adrenal glands. It has numerous functions but the one I’m going to highlight is it’s function in the wake/sleep cycle. The normal 24 hour rhythm of cortisol is that it is supposed to peak around 8 am and then slowly diminish through the day until it hits its low 3 AM the following morning. From there it should ramp back up to its high at 8 AM, cycle repeat. The peak level seems to have a stimulatory effect on the brain and body thus waking you up, so obviously you want it high in the morning and low at night.

    It is known that stress and anxiety will have an effect on cortisol levels. Short term stress is usually addressed with adrenal but long term stress is met with increased production of cortisol. If you suffer from long term anxiety/stress your body begins to produce more cortisol. After prolonged period of this you will lose that normal rhythm and fall into random depending on your stress levels. What likely happens is you use up what cortisol you have during the day, due to stress. Then you will likely experience a crash when you are out of cortisol (adrenal fatigue) in the afternoon. From then on your body will work furiously to produce more cortisol which will peak at night when you’re supposed to be at your lowest level thus waking you up.

    As to those horrible jerks and feelings of energy surges, rapid heart beats and other panic type symptoms. I found one article that said the longer your keep over producing cortisol, eventually your adrenal can’t keep up with the demand as they get fatigued. So instead, if you’re out of cortisol your release another hormone from your adrenal glands: adrenaline! This certain makes sense to me as the more tired I am (think low cortisol or adrenal fatigue) the worse my jerks are. Likely because I’m secreting adrenaline now instead of cortisol.

    I’ve also found these other tidbits about increased cortisol levels that would explain some of your other postings on this board:

    1. Cortisol raises the level of free amino acids in the serum. May be why the 5htp is deficient and why the supplementation of it helps
    2. Cortisol acts as a diuretic. There have been posts of increased urination and benefit of supplementing electrolytes and other minerals. This could explain why we are low on these.
    3. Sustained stress resulting in high levels of cortisol reduces serotonin and other brain neurotransmitters (for my garlic munching buddy)
    4. Sustained use of alcohol for prolonged periods of time increases levels of cortisol in the body.

    Last night I decided to have a few drinks and had a horrible night. I’ve mentioned before that I’ve managed these jerks over the years by drinking alcohol. I now believe that even when I’m not drinking alcohol my body was so used to that stimulus of alcohol that it just automatically starts producing cortisol at night. In other words, I’ve created this malfunctioning cortisol rhythm by my drinking, but also I believe by my anxiety issues during the day.

    In conclusion, I believe many of us are suffering from a cortisol rhythm disruption due to stress and anxiety. I believe the only way to fix this is to address our anxiety and find a healthy way to diffuse it. In the article I had posted previously there were suggestions on other things we can do to re-establish the normal cortisol rhythm. If interested please read it.

    Finally, I want to thank all of you. I’ve had this condition for over 15 years and was resigned that it would never get better. Once I found this board I felt motivated for the first time to try and fix this. I’ve always had a supportive family for this condition, but they couldn’t know what I go through every night. What WE go through. Reading your posts and posting myself has been very therapeutic for me. From the bottom of my heart thank you, and hope this helps.

    • Pdoc-

      I agree with most of what you say, and quite honestly, its all very confusing to me even after 18 months of studying the heck out of my condition. I feel like this thing is way more complex than just a dysfunction in cortisol. I have had repeated tests to look at my adrenal hormones and everything was off, but not way off. Oddly, my daytime cortisol is normal and I absolutely cannot take a nap, ever, during the day. Why is that if its a cortisol issue? Well, of course it might be for some- but probably not for me. Like I’ve said before, clonazepam caused this for me. Clonazepam disrupts the natural production of GABA, among other things- a key neurotransmitter for sleep. It it also known to wreak havoc on the entire body, as it has done to me. My heart rate is high, I have neuropathy now, digestive issues and for the last 2 months I’ve had extremely long menstrual cycles. I recently had this checked out and they found a large polyp and also my uterine lining is too thick. What causes that is too much estrogen, which can be a result of low progesterone. So, now I’m thinking that I’ve got low progesterone, other abnormal hormone levels, and neurotransmitters that are all way off balance… With the latter being the cause of all of it. Serotinin, GABA and some other neurotransmitters are responsible for seizure disorders. I feel like my condition is s type of seizure as I see flashing lights at the moment of sleep, I get brain zaps and i feel electric shocks with the jerks. Many times i just get a jerk or an adrenaline rush too- its a mixed bag. It all sucks horribly and would love an answer that makes 100% sense. I’ve come to conclude its too complicated to figure out (otherwise we would all be on cortisol blockers or antidepressants, etc. and living our lives right now). Maybe for some, this boils down to one simple little thing like low serotonin. In those cases, I beleive the symptoms must be so mild that they can be fixed by garlic and whatever else. I highly doubt that this particular person has suffered in the same way as myself and some others on here. I’ve tried tart cherry juice and every supplement under the sun without results. Ugh. Anyway, having a bad day with this shit (only slept 2 hours).

      • Hi Jessica

        So sorry to hear about your condition. At my worst, I was having what I consider full on seizures for 30-60 seconds when i’d wake up. Thankfully that is no more but still plenty of jerks.

        At any rate, not trying to argue with you but your comments made me dig to further justify my theory. So here it goes:

        1. Having normal cortisol levels during the day isn’t the problem. It’s the night time cortisol levels that’s the problem. Though I have no answer why you can’t nap during the day.

        2. High heart rate could be explained by adrenaline. If you’re in adrenal fatigue from over cortisol production your body will release adrenaline instead.

        3. Cortisol stimulates gastric acid secretion. If you’re over producing cortisol I assume you’ll do the same for gastric acid, hence the digestive issues. Plus when cortisol is released, your body is in a state of fight or flight. Not the ideal state to be in to digest food.

        4. I had mentioned cortisol raises free amino acids in the serum. Amino acids are the building blocks of neuro transmitters. If they aren’t readily available your neuro transmitter production will likely be affected. I suspect that could cause or contribute to neuropathy.

        5. The flashing lights you see I find interesting. I found an article that says one of the two groups of cells responsible for producing slow wave sleep is called the ventrolateral preoptic nucleus in the hypothalamus. I wonder with the over excitability of your brain and deficient neuro transmitters if you are getting an excitatory spill over into the optic nerve?

        6. I stated that high protein diets (which I have been on for a long time) increase cortisol production. Well in a study with rats they found not only did high protein diets increase cortisol but also DECREASED GABA. Not sure if it was the high protein diet or increased cortisol that decreased GABA, but once again there is a connection. See article link below:

        http://paleoforwomen.com/protein-cortisol-and-gaba-why-moderating-protein-reduces-anxiety-and-lengthens-life/

        I’m curious if you’d be willing to share why you were put on Clonazepam? Was it for anxiety issues or seizures? Don’t feel pressed to answer if you don’t want.

        Starting the Cortisol experiment next week. Will likely be a month or more to find out if it works. Will be sure to keep you all posted.

      • Kdoc- no I don’t mind sharing (I’ve already aired my laundry all over the Internet with this stuff). My baby was two months old and I had a Normal case of insomnia. Couldn’t drop off to sleep right away between bottles (I had just stopped breastfeeding and my child was also sick, contributing to the problem). Never had anxiety or depression in my life. The sleep actually corrected itself after several weeks and I stopped taking the pills. I restarted it again a few months later when noisy guests in my house were keeping me from falling asleep. I reacted to the clonazepam almost immediately at that point. Stopping and restarting benzos is called “kindling.” Im very senstive to this type of drug and should have never taken it again. I was kindled and i am still paying for it, 14 months after my last dose. I had a neuropsychologist explain benzo damage to me and she confirmed that everything I’ve read online is true. Benzos stop the upregulation of GABA and disrupts serotonin and everything else. For me, I am convinced that this is my primary issue. Perhaps there is a cortisol issue too, but it all started with the brain damage.

      • Interesting information kdoc. I sometimes tend to wonder also whether high protein or eating alot of meat makes things worse. I had over 10 days of minimum jerks and twitches this week (first time in 10months) to the point where I felt like my old self for 10 days after 18months of this torture. I’ve been on a salad diet for dinner and whether it was coincidence seemed to have better sleeps. Last night we went out and I had some lamb which probably had spices on it and had a shocker of a night. My body felt like it was buzzing all night and the twitches on onset were horrendous. 200mg gabapentin later I managed 3 hrs. I also.noticed for the 10 days my tinitus was almost gone, but guess what last night it was back. I didn’t do anything different yesterday during the day. Managing to control.my stress and anxiety these days which has helped. I also still have thr problem with excess wax in both ears every day, It’s like a tap running and no ENT can figure it out other than some fungis in my ear and some drops. Castro issues also the last 2 months which I cannot work out from. It could be withdrawal from some of the meds I’ve stopped who knows. Anyway, keep us updated and hope we can find some relief in the future.

      • Thanks for sharing. So sorry to hear that. You are another victim of the Pharma machine. I believe my problem is self inflicted between the anxiety and drinking. Will let you know if I have any success.

      • Jessica; Has your gyn checked your hormones levels? If your estrogen to progesterone is out of whack, it can cause ongoing insomnia. That’s been my experience anyway, even at times when I was in my 20’s. Estrogen dominance could be the culprit and taking a light dose of HRT for just for a few months can help, and for me it started helping within a month. Just a thought. You’ve been off the clonazepam, etc. for a long time now so maybe it’s no longer the primary cause for your insomnia.

    • Thank you for your post and theory. If you find some way to reset your malfunction to cure the jerks please o please keep us all informed. Want to post that I saw third neurologist yesterday and was informed that clonazepam is the recommended therapy for hypnic myoclonus and idiopathic propriospinal myoclonus. Unless your paraneoplastic blood work shows some immune or other irregularity no other treatments are indicated. 😦 He did say he would do a literature review of this condition when the problem exists only during the sleep wake transition and call me if he finds something that would change his recommended stay on clonazepam.

  4. So begins the experiment. My goal to re-establish proper cortisol cycles begins today. For any of you wanting to give it a go I’m laying out my strategy below. Mind you, this is what I feel is best for me but likely some of the ideas would help you too. Also, I’m saying my goal is to lower cortisol levels and then re-establish it’s normal cycles. If you are of the persuasion that low GABA levels are to blame, whatever you do that lowers cortisol should simultaneously increase GABA levels.

    Diet

    I have been on a high protein, low carb diet for I don’t now how long. I’ve cited previously why this can cause an increase in cortisol levels. Previously I was getting close to 170 g protein a day (1 g from each lb body weight). I’ll now be going for .5 g per pound of body weight, cutting my normal intake by half. I’ve also been not good about eating carbs so will be boosting them considerably. I’m now eating a serving of carbohydrates with each meal (a serving = portion size of my fist). I wish this meant I could be eating candy, cookies, and doughnuts but will be using: sweet potato, potato, oatmeal, brown rice, and quinoa. Fat is also important for lowering cortisol levels so will be included with each meal. Cooking with REAL butter or olive oil and eating nuts will go with me supplementing fish oil (wild talk about under supplementation). Also giving up caffeine and alcohol.

    Try to eat higher carbs and minimize (or eliminate) protein before bed.

    Supplementation

    DISCLAIMER: I am not advising any of you do what I’m doing. Just letting you know what I am trying. To me this level of supplementation is meant to be temporary. I kinda view my condition as a car rolling down a hill and heading off the road. The supplements therefore are like adjusting the steering wheel, so that once I’m headed in the right direction I won’t have need to touch the wheel again. Also, nothing here is meant to be “taken” specifically to help me sleep. Rather, I’m using this to fix what I believe is out of control cortisol secretion. Once that is fixed, I’ll sleep better (or so I hope.)

    Rationale for this has been cited earlier so if curious look at old postings. I am taking high levels of fish oil (Omega 3), B vitamins, and vitamin C. All of those have been found to help lower cortisol and raise GABA. I’m leery to give specific dosages so will suggest you read some of the previous articles I posted for recommendations. But my timing of taking these is important. I take about 1/3 of the dosage first in the morning but then 2/3 right before bed. I think this makes sense as we are trying to decrease cortisol at the end of the day and increase GABA as is the natural rhythm of things.

    I’m still having trouble with my anxiety so for now am also using an herbal supplement 3 x day. I choose it for Valerian root but it also has other natural sedating things in it. Feel free to add or not if you think you need it.

    Anxiety/Stress

    This will perhaps be the hardest thing for me to fix. I realize that I have an almost Pavlovian stress response to daily things. Anything from going into work, being at work, coming home from work, putting the kids to bed, etc. I’m hoping the above mentioned strategies will help lower my overall anxiety level. But clearly I need to work on retraining my response to daily stressors. I’ve been using the Buteyko breathing method along with Prana breath methods and that seems to help. But also working on mindfulness to identify when I’m getting stressed because I think I’m so used to it I don’t realize it’s happening.

    This is Step 1. I’m trying to corral an out of control cortisol system. I personally feel like my adrenals pump out cortisol til they are out, produce more and then start cranking it out again. Sort of like someone sprinting til they can’t anymore, resting til then can go and start sprinting again. At least that’s how I feel.

    If Step 1 works, and I think it should in 1-2 weeks, Step 2 will be trying to set cortisol rhythms back to normal. I will let you know in a week how it’s working. Good luck all.

    • Kdoc-

      It sounds like a good experiment to try out. I do recall you mentioning in another post that you drink alcohol and you think it may or may not contribute to your jerks. Please consider the fact that some people have gotten this condition from alcohol. It is similar to benzos in a way as it hushes down GABA as well. I do not personally consider it the same type of monster that benzos can be (I used to drink in moderation with zero side effects), but we are all unique in our sensitivities. It could possibly be the reason your cortisol is wonky, if that is your issue. Perhaps you may want to cut the alcohol out too?

      • Hi Jessica. I agree with you. I think I mentioned I was giving up alcohol and caffeine but it was in probably hard to follow everything I was saying.

        Soon after discovering this blog over the summer I decided to make some changes and went 4 weeks sober for the first time in 15 years. At first my jerks became MUCH worse. I suspect it was because my cortisol out of whack and now no more sedating effect of alcohol. But slowly over 3 weeks I improved to the point where I had 2 nights where there were almost no jerks! I was thrilled! But then I had some life stressors get the best of me and the jerks came back. After a week of jumping around in bed again I became depressed and went back to drinking.

        I know all this because I’ve been keeping sleep logs for a while. What I hope I missed is the other dietary and anxiety things I mentioned. Combined with sobriety I think I should get there faster.

        But you are right. Everything I’ve read is that alcohol use increases cortisol. Cortisol and GABA seem to have an inverse relationship so I see your point.

      • Kdoc-

        Well, on the bright side, recovery from alcohol use is in no way as horrible and as long as recovery “can” be from benzodiazepines! But I would assume that with both, you can expect some waves of symptoms that will get discouraging. I am suffering from horrible waves of symptoms that get much worse around my menstrual cycle (when progesterone is low). This comes after 10 months of solid hell: every night was a living nightmare! It wasn’t until the 11th month that I would have some better days (but never normal yet!). It is so easy to feel defeated when things get worse… But I’ve been in touch with several people who healed from this garbage after taking benzos. In my case, it will likely take me 2-3 years off the drug to feel much better as this has been the average for people like me. You are so very lucky you didn’t get sucked down the benzo path like so many… Especially if you are possibly sensitive to gabaergic substances like alcohol. And just an FYI (really not meant to scare you… Just a precaution): valerian root and ashweghanda are a few herbs that have gabaergic properties to them and should be avoided during “benzo” recovery. Not sure if they might hinder recovery from alcohol, but I would assume so. I know a lady who was hit horribly with this condition after taking ashweghanda. That particular one is a huge no-no as its considered the strongest Ayurvedic out there that has caused many problems. It really should be taken off the shelves!

      • Hi, finding both your comments extremely useful so thank you for posting them. I love that they are practical as well as hopeful.

        I have had this condition since April and it began from getting little sleep for 2 weeks when working abroad. I had a great job but was feeling over stressed when I went away. Usually I take some zopliclone with me for nights I can’t sleep (room tend to be noisey and uncomfortable when I work abroad). The last day these jerks started and I didn’t think much of them at first. Bsck home they didn’t stop and anxiety set in.

        Extremely long story cut short, I am taking Keppra which has helped but not enough. I am going to switch to Epilim or Gabapentin. I started clonazepam in June, went to 1.5mg but now I take 0.375 – 0.225mg which at the moment gives me 6-7hours. I get jerks before I knock out and in the morning. Once I am awake then there is no going back.

        When I have a drink I don’t take clonzepam and still get rest. In fact usually I fall asleep quicker after 2-3 glasses of wine. Doesn’t make me feel great the next day though. I can report I have had no withdrawal symptons yet from clonzepam when I don’t take it or when I lower it. I do get bad nights though when I have upp’d it.

        My dream is to go on an epilepsy drug that manages them and I can use clonzepam as and when needed until….pray to god….the jerks heal. I am taking lots of supplements to enhance GABA, this has helped me massively in terms of anxiety….but not much on the jerks…still early days though.

        I have formed depression from all this and I am waiting to see an epilepsy specialist to see what I can take. I have lost a lot from this illness and like many treated like I was delusional for 5 months before I sort private help just to get the ball rolling. I am actually sueing my doctors for what they did.

        Things are a lot better now but I am worried what the future holds. Or I try not to worry to help. I have to say clonzepam has helped me a lot but I know it’s dangers. Think I am lucky at the moment I don’t feel any major effects from it.

        Thank you all for posting with tips etc. Ang successes please post. I would like to hear of more success stories for hope. I have only heard of one.

      • Hi steph-

        I’m sorry you are another victim of these damn jerks! It truly feels like a prison sentence.

        Did you say that you took zoplicone leading up to your jerks? Have you considered that they caused your symptoms? A lot of people are unaware of this, but zoplicone is a z-drug which acts in a very similar way to benzodiazepines. They are referred to as a “baby-benzo” as the side effects from them almost mirror those of benzos. If you ever visit benzobuddies.org, you will find that many people are on there from tsking a z-drug, not a benzo.

        I have met several people who are completely or mostly healed from this condition. Most of them were on benzos. There have been a few who treated themselves for either metal toxicity or cipro use.

      • Hi Jessica

        Thanks for the heads up on Valerian root, I had not heard that before.

        Been reading more about Benzos since talking with you and it sounds horrible. As you said, they should pull this stuff off the shelves.

      • Hi Jessica,

        I only used to take zopliclone when I was away and couldn’t sleep. This time I forgot to take any and these jerks started! I only worked away twice a year and would take about 3 tablets over the course of one contract, I would often sleep better after a night on zopliclone. So to throw a spanner in the works I think not having those with me led me to be sleep deprived and then this happened!

        I have stayed away from benzo buddies so I don’t get too upset regarding needing clonazepam. It has helped me a lot. Like I said the dream is to wean off this as my body heals but at the moment I feel I need it. Its interesting to see how different we are in circumstances but we have this bizarre illness.

        It is good to hear people are healing from this. It really is like a prison sentance.

      • Steph-

        Well, it seems clear that you know it wasn’t the zoplicone. At least you can rule out drugs causing this for you and focus on what else it could be!

      • Indeed take care and hope you heal soon.

  5. Do you guys have subtle twitching during the day?

    • The first 15 months yes. Things settle with time. How long have you had the jerks Jen?

      • I’ve had this for so long I can’t remember for sure, but I would say no. Rather I notice a kind of shaky feeling in my arms at times. I’m of the belief that is due to adrenaline being released instead of cortisol due to constant stress/anxiety. I imagine twitching could be a side effect of some of the drugs you mentioned you were on (that is if you are the same Jen that posted earlier.)

      • I’ve had the jerks REALLY bad but they are getting fewer and lighter now. I’ve had them since three or four months ago. I had them so bad that I got no sleep twice and then two hrs a night otherwise. Recently I started receiving treatment from a neuroscientist who did a brain map on me and determined i had a ton of anxiety and insomnia so then he started his treatment on me me for those problems . I’ve seen this dr 5 times since Thursday last week and I’m noticing remarkable changes!!! I got off both Zoloft and seroquil (used for stress and sleep) and last night I only had three twitches total! ( I’ve had countless before) But I fell asleep on my own from 9-12 pm. Woke up tossed and turned so I took melatonin triptothan and fell asleep at 2 and woke at 5am. I think this might be my cure and I have to thank God for this!!! We prayed so hard for wisdom and answers to my twitching problem and He provided this. It’s been working. I’m going to treatment this am. The reason I asked if you guys twitch in the day is bc I used to twitch in the day too and now not so much. I think the treatment is calming my whole body down. Praise God! I think the adrenaline is finally starting to subside. What state and city do u guys live in? My scientist is in LA, ca.

      • What is the treatment ?

      • Jen,
        Is your treatment like neurofeedback? I did 4 sessions of it when I first came off clonazepam. One session made my legs jump around like crazy.

        I used to twitch really bad during the day. It gradually calmed down and now I just get some random ones here and there when sitting. I would say it went from a 10 to a 3… But the dang jolts at night have picked back up and now I’m really suffering again. None of this crap makes any sense. 14 months off clonazepam and my body feels like it will eventually fall apart and die at this rate. My heart has been having pains so I’m wearing a heart Monitor for 2 weeks. Does anyone get pains in their heart?

      • Yes it’s neurofeedback. Jessica, did you stop at 4 sessions? If not, how many sessions did you have?

      • I had 4. It makes sense that its helping you. Your brain didn’t get damaged by meds. Seems that nothing can help drug-induced damage except time away from the drug. Just sucks as I was so very hopeful that the treatment would help. It really just made me feel worse like everything else has.

      • Jessica I had 7 sessions so far. If you were able to get off Klonopin with neurofeedback, that’s great! With neurofeedback, you have to keep going to cement it into your brain. I was told a minimum of 3 months is necessary. I learned that neurofeedback is like going to the gym, it takes time to build a muscle. Likewise, it takes time to build new pathways in your brain. My brain waves were totally off and they are being retrained to the proper wavelength. What city are you in? I could recommend my guy. I discovered it’s important that an experienced expert is overseeing your treatment as if done wrong, it could really set you back as well. On the drive back from neurofeedback, I was able to take a 30 minute nap . This was unheard of before neurofeedback. I would have been super twitch/adrenaline woken otherwise. I just thank God for such a miracle!!! Please don’t get upset but I think it could help you if you see an expert. I’ll keep you in my prayers bc I know those twitches are horrible. God bless you!

      • Wow. It sounds like you’ve had an amazing experience with it. I was already about 1 month off clonazepam when I started treatment. I’m in Montana and there are limited providers here. Oddly, these types of treatments don’t seem to work on people in benzo wd. I have heard of it working for people in opioid wd though. My provider said that i would probably notice some improvement after 1-3 treatments. I don’t get it. This is the most frustrating thing to go through this for so long and have nothing help. Man people also find at least some relief with magnesium and other supplements and they only make me feel worse.

  6. Hello all. Captain Cortisol here giving you an update from my previously mentioned experiment to lower cortisol levels. It’s been about a week and while I’d love to say I’m cured that is not the case. It has been an interesting week though.

    In addition to the steps I’m taking to lower cortisol (see previous post) I’ve also been using a pulse oximeter to track pulse and O2 levels through out the day in attempt to quantify my anxiety levels. My o2 levels tend to stay in the 95-98 range but there’s a definite connection between increased pulse and anxiety levels (which I associate with higher cortisol or adrenaline levels).

    So the week started with varying levels of anxiety/high pulse levels through out the day. As I became more aware of the high anxiety levels I was able to help reduce or control them. I didn’t mind if my pulse was high or if I was jazzed in the morning as cortisol levels are supposed to be higher then but wanted to keep pulse rates lower at the end of the day especially before bed. By the end of the week I had better control over my anxiety and found it that things that would normally cause me that anxious feeling didn’t as much. So this is good. But by the end of the week I noticed another phenomenon that I’ve had plenty of times before. So I wanted to run this by you guys:

    Wednesday I felt tired around 3 pm and was able to lay down for about 15 minutes. Then Thursday around 11 am I felt tired and by noon was exhausted but couldn’t lay down for a nap. So I was exhausted all day til I went to bed around 8 pm and slept like sh*t that night.

    Now here’s my thought. Most of you will probably say you feel tired during the day and rightly so as we don’t sleep like normal people. I always attributed my tiredness during the day to the bad night sleep. But here’s the thing, I slept fairly good Tuesday night and Wednesday night yet felt tired Wednesday and exhausted Thursday. I’ve noticed before that on nights I sleep “good” I am really tired the next day. So, in line with my cortisol argument, maybe the tiredness is because we’ve hit adrenal fatigue and are out of cortisol/adrenaline that has been keeping us going rather than just having a bad night sleep. See, I believe that perhaps our cortisol secretion is so screwed up that we’re running on it like gasoline all day instead of secreting it just in stressful situations. I recently found an article that talked about some people may have a hyperactive corticotropin-releasing factor (results in cortisol) either due to genetics or stressful conditions. If this gets switched on and not turned off it will eventually result in fatigue where our cortisol levels are empty. That would give you a “good” night sleep as it wouldn’t be waking you up as much (or perhaps a bad night if you’re body switched to using adrenaline as cortisol is gone) but you’d be exhausted the next day as your body is still running low on cortisol. Hope this makes sense.

    So my question to you is: do any of you have days or cycles like this? Where you’ll sleep good but then feel really tired the next day? I would also bet you have days where you are tired all day (low cortisol) but then sleep bad that night (body finally produced more cortisol so is cranking it back out).

    On a positive note, I did sleep better this week. Also feel my anxiety levels are lower and better under control. Hopefully next week will be even better.

    • Yes I have this sometimes . What is the solution ? I can tell you 100. Percent sure testosterone therapy causes them for me . Ones I doubt anyone here has had . That bad . Meaning hormones play a part .

      • Thanks Mark. Not sure how testosterone plays in yet, but will look into it. I believe the solution is to restore proper cortisol cycles/rhythm.

      • Hi kdoc, have you had any luck taking a nap? It’s 18months for me and no luck with a nap. I’m having some ok nights finnally, but no nap. I heard it does take time for the brain to heal. Watching what I eat late helps a little,as do breathing techniques.

        Mark, yours seems to be an easy fix right? Don’t take or do anything that brings them on. I wish I could find out what brought mine on out of the blue, when I had no stress I’m my life.

      • Well from what I’ve found testosterone should reduce cortisol if anything. However, high cortisol levels could have been the reason for your low testosterone to begin with as cortisol will reduce testosterone. I wonder if you were under high stress prior to your testosterone levels being low?

      • Hi Ck

        My naps almost always end with me jerking awake, though I think I get some sleep. I’m usually only down 10-15 minutes but may jerk awake 1-5 times. It is odd. But there are days where I don’t need a nap, days I will choose to take one, and days I have to take one. I never questioned that until just recently, hence my previous post.

        I’ve done a good bit of research on all of this. I know alcohol can have an effect on all this (both from research and personal experience) but my problem predates my drinking problem. I can remember being back in high school being so tired from not sleeping I’d be falling asleep in the shower before school. The only thing that spans the gap is the anxiety problem. So that’s why I am trying to prove it is a cortisol cycle disruption. Because if it is, then I can fix it.

        But I am sleeping better too. My jerks are more mild. They don’t wake me up totally and I seem to be able to go back to sleep easier. I meant to write you back earlier about the protein post. Since cutting back on my protein my anxiety levels seem to be better. And I agree with you about taking time to heal. I mean, geez, I’ve been dealing with this over 15 years. In a way, I view this whole thing as a bad habit. How long does it take to break a bad habit? It’s not just reducing cortisol levels. It’s not just re-establishing proper cortisol cycles. It’s also breaking the anxiety/stress responses to daily living, re-doing my diet and letting my body acclimate to it, giving my body the proper stimuli at the beginning/end of the day. And once I do all that, STAY THE COURSE. Tall order but worth it if I can sleep like a normal person.

  7. My cure: Neurofeedback from an experienced expert🙂

    I’ve had the jerks REALLY bad but they are practically gone now. I’ve had them for three or four months now. I tried everything but nothing worked except neurofeedback. I had twitches, jerks, adrenaline rushes so bad that two hours of sleep was considered normal for me. Recently I started receiving neurofeedback treatment from a neuroscientist, Dr. Andrew Hill, in Ca. I went from two hours of sleep to six hours of sleep. I am no longer on Zoloft and seroquil (used for stress and sleep) I thank God for this!!! We prayed so hard for wisdom and answers to my jerk problem and He answered. Praise God! i know everybody is different but for those of you who are desperate as I was, please give it a try for three months for your own sake.

  8. learn about Neurofeedback

  9. If u go to my guy, please tell him I recommended you.🙂

  10. Saw a neurofeedback specialist today for my first visit. We did the brain mapping and found some definite imbalances. What was interesting was while she was putting the electrodes on my head she noticed the scars on my head and face from numerous head injuries. My sleep problems date back to when I was quite young. Though I don’t remember it I was told I used to sleep walk as a young child. I do remember having issues to not being able to get to sleep in my adolescent years and high school years before the jerks started in high school. Anyways, I digress. My first head injury was when I was either 2 or 3 and then had numerous injuries after that mainly from sports (football and boxing), at least 2 ended with concussions. My therapist feels that all this may stem from that first head injury and been made worse with the subsequent injuries. What also was interesting was the mapping showed a lot of disturbance at the left front of my brain, which is wear I hit my head at age 2-3 (I know because there is a slight dent in my forehead… don’t I sound like a handsome fella?).

    Time will tell of course but I found this very interesting. I wonder if anyone else out there has history of head trauma? Could also be from a car accident/whiplash.

    • My twitches have started coming back 😦 Kdoc. How is neurofeedback working for u? I still think neurofeedback can help but just went on the wrong direction

      • I have not had a session beyond the brain mapping one yet. This upcoming Tuesday will be my first treatment session. I’ve read it can take 10-40 treatments so am not expecting any earth shattering changes this week.

        Sorry to hear the twitches are coming back. The fact that the neurofeedback helped makes me think you are on right track but maybe you are missing some other pieces of the puzzle? I still say unchecked stress/anxiety is partly to blame for this. Possibly some nutritional deficiencies?

        I was very intrigued how the neurofeedback therapist I saw immediately honed in on the head traumas I’ve had as to why my brain is out of balance. And it makes sense, so I am hoping the therapy will help. But I was also making progress with the steps I have been taking (mentioned in previous posts).

        I have been doing my cortisol correction experiment for about 2 weeks now. What is interesting is the first week I noticed a gradual change toward sleeping better. However this second week has been worse than the first and there have been no changes in my approach. While this originally would be cause for concern I’m actually viewing it as further progress. While the jerks seem to be getting worse I’m experiencing things I haven’t felt for awhile. Specifically I’m feeling more awake at night where as I’d usually be in a half awake/half sleep state most of the night while I’m jerking around. So I am viewing this as I’m back tracking through time, experiencing the progression of my hypnic jerks backwards. My hope is that eventually I’ll get back to the point where I was not having sleep problems. Sort of like untying a big knot, you have go through all the knots until you get to the original one.

        Not sure if I’m making sense, but perhaps you’re not getting worse but just backtracking. I’d say stay the course and perhaps consider your stress needs to be addressed in a healthy way.

        Will keep you posted how my sessions go.

      • Kdoc what city state are u in?

        Mine is anxiety . I have general anxiety disorder where I experience anxiety in my stomach 24/7. I’m not on meds but it’s tough. Please keep me posted as I will also keep u posted. How old are u, if u don’t mind me asking?

      • Hi Jen

        I am in Pennsylvania and in my mid 30s.

        I have made numerous posts with regards to how anxiety can affect cortisol levels and the steps I am taking to help correct this. I suggest you read them as so far I am seeing positive results with the steps I am taking. Not just with sleep better but also with less daily anxiety.

        Anxiety is a difficult beast to slay. In my case, I think developed bad habits where I immediately default to stress response in reaction to daily events. I’m realizing that in most cases I’m over reacting to such daily events and am working on not stressing out so much. It helps that the other steps I mentioned seem to be lowering my overall stress levels. But I’ve got a long way to go as I’ve been doing this bad behavior for years.

        Anyways, I believe you’re on to something with the neurofeedback. I had not thought of that so I thank you for bringing it to my attention. I believe in combination with my other steps I’m going to get rid of these jerks some day.

        Hang in there, keep thinking positive, and again, read my previous posts. May have something in there to help you.

      • Kdoc,
        Thanks for your words of encouragement. At times, I’ve gotten so sad I didn’t know what to do or how to handle life this way. That’s why when I tried neurofeedback and had 90% of my anxiety instantly shut off I was amazed. However I was told most people don’t have such a quick response. Sadly, my treatment has gone haywire and I must keep seeking the perfect neurofeedback protocol. Thanks for the cortisol info, I’ll look into it. I’ll keep u posted and please keep me updated as well. Take care for now!

      • Sorry to hear this Jen, I have just booked to do this in the UK from reading your post. Thought it was the answer. I hope its just a little glitch and you start recovering again.

  11. Hello i am here again spreading buteyko propaganda.

    I think a lot of you have the misconception that buteyko is some sort of yogi training.

    It is not.

    The therapy is starting to emerge as a succesfull treatment for sleep apnea, sinus problems, epilepsy, and anxiety disorderd.

    Please read in on the papers of Claude Lum on the importance of Carbon dioxide in the organism.

    I have seen great improvememts since practicing.

  12. Hey B2, glad to hear you are improving. You’ve heard the expression that “there are more than one way to skin a cat”? Well I believe this saying applies here.

    I am finding success in a different way. I had tried Buteyko and noticed I felt different during my first session. I’m sure it’s doing something but will admit I have not stuck with it, mainly due to having trouble fitting the sessions into my variable schedule. Instead, I’ve been making progress mainly through dietary changes.

    I have mentioned previously I was on a low carb diet, high protein diet for no other reason than I preferred that way of eating. In doing research I found high protein, low carbs can lead to increase cortisol levels. So I halved my protein and started eating more (good) carbs. In the first week of doing so I started to sleep better. In my second week though my sleep regressed some. Initially I attributed that to a fluctuation in the process to getting better. But then I realized it corresponded more to what types of carbs I was eating and how close I ate to bed time.

    What I found was not eating close enough to bed and/or eating high glycemic carbs before bed resulted in a bad night. Eating good carbs right before bed made sleep better. I’m thinking there is a connection between blood sugar levels and all of this. I found this on a natural doctor’s site:

    “Avoid nocturnal hypoglycemia. In my clinical experience I have found nocturnal hypoglycemia (low nighttime blood glucose level) is an important cause of sleep-maintenance insomnia. When there is a drop in the blood glucose level, it causes the release of hormones that regulate glucose levels, such as adrenaline, glucagon, cortisol, and growth hormone. These compounds stimulate the brain. They are a natural signal that it is time to eat.”

    So the last few nights I made sure to eat carbs within a 30-60 minutes before bed. And while it’s not perfect, I definitely slept better. I bought a FitBit to track my sleep at night and on average I have 30-40 disturbances per night. Last night was only 17! I also felt I slept better.

    I am now making it a point to eat good carbs through out the day to try and keep my blood sugar level and we’ll see what that does. Now, I’m not saying this is the be all to end all for this. Just saying it may help some of you.

    Simple experiment for those that are game. Within an hour before bed, eat a fairly decent portion of good quality, LOW GLYCEMIC LOAD carbs before bed. See if you notice a difference.

    To give you an example: beans, lentils, fiber rich fruit, whole wheat toast is ideal. Bad would be candy or white bread/pasta. Just google low glycemic load foods for a list of good and bad.

    Let me know if you have any success!

    • Serotonin also plays a role in blood sugar levels. https://www.psychologytoday.com/blog/evolutionary-psychiatry/201105/sunlight-sugar-and-serotonin
      When blood sugar goes too high, it subsequently causes a sudden drop in blood sugar later. Simple carbs are known to cause this reaction.

      • Another article explaining how serotonin levels affect blood sugar.
        journals.plos.org/plosbiology/article?id=10.13171/journal.pbio.1000227
        It appears that being deficient in serotonin, which can be caused by a lack of sunlight or a lack of eating complex carbs, among other things, can cause blood sugar instability. Lack of serotonin could be the cause of diabetes, which is a disease known to cause lots of fluctuations in blood sugar i.e. lots of highs and lows.

      • journals.plos.org/plosbiology/article?id=10.1371/journal.pbio.1000227
        This is the same article from my above post.

      • Sorry guys! Not sure why the article keeps coming up with that big space in it. If you type it into a search browser it will work.

      • Good point Anonymous. It seems many of the positive steps we can take will elevate serotonin and GABA while reducing cortisol and other stress hormones. They are clearly connected. I also found a connection between low carb diet and lower testosterone levels for the fella who made a comment about testosterone.

        Hopefully now that I’m correcting my diet and adding more good carbs my serotonin levels will come back up and cortisol will set back its normal rhythm. Though I’m sleeping better I’m having the problem of waking up around 2-3 AM and being awake. It’s not the jerks but just I’m awake. I would rather that time be 5-6 AM but lately that’s when my body has been waking me up.

        Will keep on trying. Had my first neurofeedback session Tuesday and it went well. Heading in the right direction at least.

  13. Hey Jen

    how’s it been going with the neurofeedback treatments? I know you had a set back, but doing any better now?

    I’ve had my second treatment this week. My therapist said there will periods of improvement followed by setbacks during the course of care. Appropriately enough since my last treatment I’ve been sleeping worse. In fact last night was the worst night I’ve had since I’ve been monitoring my sleep with the FitBit: registered 47 times awake/restless and 99 minutes awake. BAD night.

    Trying not to get discouraged as I was doing better prior to the Thanksgiving holiday. Since, it’s not been as good and especially the past two nights have been rough. I think some of it is due to this time of year, a lot of stimulation and excitement.

    Hope you (and everyone else) is doing better.

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s